Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-24-2012, 05:56 AM #11
SAMPLUIS SAMPLUIS is offline
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both neck mri n brain mri were totally clear tho the bone scan results were what i said in the post, sorry this reply will b quick, have a migraine today, neurosurgeon put me on epilim epilepsy meds n is just telling me i have a tension headache, guess this is just my normal life now..ive had enough opf it so just going to accpet it. epilim worked for few days n that was it..im in campbelltown sydney australia, thanx everyone for ur help. i will consider the vascular surgeons n neurologists, the arm thing i think is a good point
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Old 09-25-2012, 04:48 AM #12
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If it really is a tension headache, or tension is at least part of the cause, I highly recommend a book called "The Quieting Reflex" by Charles Stroebel (which you would have to buy used since it is out of print).

But I'm not recommending this in place of a consultation with a vascular surgeon, which you still need to see.

Good luck.
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Old 09-27-2012, 04:58 AM #13
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thanx so much i think it could be TOS as there was some hyperaemia in the clavicle i think which is a sign of the blood flow issue, was mild but this pain im in today down my neck n arm n on top of hand n back of head coz i havent had any codeine til the evening is making me think its TOS even more. other hand has lil pain not much. anyway thanx again, ive tried so hard to get answers, n not happy that the neuro didnt ask me directly what is going on, he just went off what my doc said, n then said "just a tension headache" .. im a cleaner for the army n need my job, n arms r often above my head, so im pretty determinded to fix this. thank god for painkillers taking half of it away for me to work, but dont want to live on tablets, ill talk to physio n also see if vascuolar surgeon will help
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Old 10-15-2012, 07:38 AM #14
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well, could be a bit closer to having injections..my neuro wantedd me in n out of his office so quick i didnt feel like i was there, so now i have a pain specialist appointment, as my doc wanted me to see them first b4 vascular. today i have an issue with my shoulder, had to do my work and someone elses, so i had to replace her sergeants rooms with linen which is in big buckets, i didnt want to carry 4 lots of bed linen up all the stairs so picked the big plastic bucket up which had 10 bed sheets n about 5 quilt covers n pillow cases, couldve weight 15-20kg of course i didnt pick it up properly at first as i didnt want to bend my arms, i just took it up one flight of stairs n then after that my shoulder pain got worse, like a stitch cramp u get when ur walking n it goes into ur clavicle n armpit n shoulder then shoulder blade n down arm , my armpit was already sore to touch in the morning. it got worse over the next few hours n when i left work it hurt to breathe, my physio thinks ive done something to the ligament , twisted it or something, n the muscles tightened n were not helpn. i still have to work as we r short staffed n noone would be able to fill my place. n its for the army so the work can not be left undone. just a waiting game now so will just see how i go on monday at the specialist. my physio said the signs of TOS r there, so will have to wait n see how this heals now. ill update as things progress
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chronic neck pain, enthesitis, headache, neuralgia


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