Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-19-2012, 06:27 PM #21
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Originally Posted by TellerMomof3 View Post
I haven't spoken to any dr.'s about it yet. Just after reading recent posts put two and two together that it could be the TOS causing it. I am going to see Dr. Robert Thompson, St. Louis, the end of November. Can't wait as the last few days have been an awful flair up.

I hope you have better luck with PT, I didn't have much success but I also don't know that my PT was real familiar with TOS. And we weren't certain at the time if it was TOS, shoulder instability, winging scapula, or what.
Let me know what you learn about the Tinnitis.
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Old 10-21-2012, 09:13 PM #22
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Let me know what you learn about the Tinnitis.
I will definately update you with what I find out, but it will be the end of November before I find out anything a the earliest.
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Old 10-24-2012, 09:21 PM #23
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Hi I was just told I needed a scalene reduction. I'm in Orange County CA. Going to UCLA for a MRI/A/V. Any suggestions on surgeon. Has anyone had this procedure done at UCLA?
Thank you for the referrals. I had my first appr with Dr Ando today. Amazing he can just look at you at see what wrong. Told me I had c1 out of alignment. Explains a lot of my pain. Look forward to working with him.
Best PT I have seen.
Thanks again

Mary
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Old 10-25-2012, 10:25 AM #24
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Thank you for the referrals. I had my first appr with Dr Ando today. Amazing he can just look at you at see what wrong. Told me I had c1 out of alignment. Explains a lot of my pain. Look forward to working with him.
Best PT I have seen.
Thanks again

Mary
Mary, I am so glad you could see Art and so happy for you!

That was my exact first impression when I saw him that he can just look at you and know what's wrong and then you stop feeling some of the pain once he fixes it. He is really like a human xray machine. You are in great hands!

I am so glad you were so prompt in seeing Dr. Ando. If he tells you to see Dr. James Sposa, he is really good too, they both do different kind of mobilizing, but very necessary and different kind of therapy that I wish I had come across 3 years back!

Dr Ando really is a true master!
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Old 10-25-2012, 12:27 PM #25
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Thank you for the referrals. I had my first appr with Dr Ando today. Amazing he can just look at you at see what wrong. Told me I had c1 out of alignment. Explains a lot of my pain. Look forward to working with him.
Best PT I have seen.
Thanks again

Mary
I was there yesterday too! so was Marc! Good luck with that. He is the best!
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Old 10-25-2012, 06:03 PM #26
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I was there yesterday too! so was Marc! Good luck with that. He is the best!
I had an intern do most of the evaluation and but Dr Ando was observing and he checked out my neck. I see Dr Sousa? tomorrow and then Dr Wu.
I feel more normal today already and I think the tinnitus is less of a scream in my ear. I hope it is the start of getting back to normal. I read somewhere that any disturbance in the vertebral arterial flow can cause tinnitus. Subclavian steal caused pulsatile tinnitus.
Still trying to get the MRI/MRA by Dr Collins approved. I read the post above about the cost. Keeping my fingers crossed. Hard to get a Dr office to but in the effort and talk to insurance company for approval.
So what time were you at Dr Ando's? I was there at 2:30.
Mary
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Old 10-25-2012, 06:09 PM #27
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I had an intern do most of the evaluation and but Dr Ando was observing and he checked out my neck. I see Dr Sousa? tomorrow and then Dr Wu.
I feel more normal today already and I think the tinnitus is less of a scream in my ear. I hope it is the start of getting back to normal. I read somewhere that any disturbance in the vertebral arterial flow can cause tinnitus. Subclavian steal caused pulsatile tinnitus.
Still trying to get the MRI/MRA by Dr Collins approved. I read the post above about the cost. Keeping my fingers crossed. Hard to get a Dr office to but in the effort and talk to insurance company for approval.
So what time were you at Dr Ando's? I was there at 2:30.
Mary
I was there earlier- at 11. I always go around that time to beat traffic. I wont be back for another 3 weeks though. Dr. Sposa is good too. Try to get an appt with Dr. Ando where he works on you. You may have to make it a week or so in advance. I dont know dr. Wu. Is she the acupunctuist? Good Luck!
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Old 10-25-2012, 10:35 PM #28
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My wife has seen Dr. Ingrid Wu. She is the female DPT. My wife likes her, she does rib and joint mobilization but I'm not sure how much TOS experience she has.
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Old 10-26-2012, 10:25 AM #29
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Mary,

I am so glad your tinnitus seems better. Wow, what a relief, hope it gets better and better over time.
Do you actually have pulsatile Tinnitus? A friend of mine in the U.K. has pulsatile Tinnitus, please post about your progress, maybe this can help her.
She might be willing to travel to see Dr. Ando if she does not find someone there to help her. Dr. Ando has been very kind to give me a link for good PT's or Osteopath's in the U.K. to help her.
Thanks for posting about your progress with Dr. Ando.
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Old 10-26-2012, 07:29 PM #30
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Mary,

I am so glad your tinnitus seems better. Wow, what a relief, hope it gets better and better over time.
Do you actually have pulsatile Tinnitus? A friend of mine in the U.K. has pulsatile Tinnitus, please post about your progress, maybe this can help her.
She might be willing to travel to see Dr. Ando if she does not find someone there to help her. Dr. Ando has been very kind to give me a link for good PT's or Osteopath's in the U.K. to help her.
Thanks for posting about your progress with Dr. Ando.
Hi
Tinnitus and pulsatile tinnitus are different issues. I have both but hard to differentiate at times. Many causes of pulsatile tinnitus which is usually vascular issue. The main thing docs look for is a Dural vascular malformation or fistula in the brain near the ear. Others are idiopathic intracranial hypertension, dehiscence of sigmoid sinus near the internal ear canal, a high jugular bulb. List goes on and on. Subclavian steal can also cause pulsatile tinnitus. I have had tests to rule out most sources. Since I have TOS and pulsatile tinnitus and the pau and noise seem to occur st the same time I figured they had the same source. That is when I found dr Collins at UCLA.. Who believes the swooshing sound goes from compression of the jugular vein and causes a back up of blood to the jugular bulb near the inner ear.
I know that when I am relaxed there is little pain and tinniitus is minimal.
There is a good website that has lots of resources about pulsatile tinnitus
http://www.whooshers.com/
Your friend may already know about that. There is also Facebook group that is very active. Great source for info on pulsatile tinnitus. Most info there is on vascular irregularities close to or in the brain.

I hoping I on the right track about this. Good luck to your friend.

Last edited by tic2; 10-26-2012 at 07:45 PM. Reason: Typos
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