Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-05-2014, 12:18 PM #21
Ciarrai Ciarrai is offline
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Ciarrai Ciarrai is offline
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Join Date: Sep 2014
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Hi Everyone
I was diagnosed with bilateral neurogenic TOS. My right should is the worst as I am right handed.

Symptoms:
Shoulder feel like it has the flu
ring finger and pinky pucker (like they were in water)
ring and pinky are colder then the rest of the fingers
hand will turn white if raised above my shoulder
generally lighter in color when not raised
can't sleep on the right side
handwriting= horrible
nails break all the time on that hand

What I have tired:
About a year of PT- a little help and some relief
Jan 2014 Botox injections
May 2014 Botox injections

I go to see my doctor next month to see what else I can do.
Any suggestions or tips I can inquire with the Dr about?
I am thinking surgery is the next step. I am also looking for some insight on that. I.E.- what to do to prep for the operation, what to preplan for after the surgery and I am home, etc.

Thanks for any help and insight.
Ciarrai
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Old 09-05-2014, 10:14 PM #22
curby curby is offline
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curby curby is offline
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Quote:
Originally Posted by Joshuamr View Post
Hey everyone....my workers comp doctor finally gave me the authorization to go see a vascular surgeon, and finally agreed that i have Thoracic Outlet Syndrome. I have started my search of doctors and narrowed it down to some in state, and if i have to, some out of state doctors. I live in NY close to NYC and the only problem i have ran into so far is that a lot of the doctors don't accept workers comp cases. I am waiting for a call back from Dr Darren Schneider from New York Presbyterian to find out if he will accept my case. I chose him based on some good reviews. I was just curious about the surgeries to correct TOS. I know there are different procedures based on your specific diagnosis, but i was just wondering about limitations after these surgeries. I dont mean right after surgery, because i'm sure there are many limitations at that point. I am talking more about long term. I am in the law enforcement field, and in my line of work you have to be prepared to use all of your limbs at any time. Right now i'm completely limited to my duties and am sitting at a desk....which often aggravates my symptoms more! With a surgery such as a rib resection or when they cut part of your pec muscle.....does this limit your arm function or range of motion permanently? After the surgery is that area now more susceptible to injury due to the change of overall structure? (like a direct blow to the clavicle/Shoulder area, or a fall impacting that area). These are all things i'm sure my doctor could answer for me eventually....i would just love to hear some first hand accounts. After my surgery my jobs doctors are going to evaluate me in order to determine if i am capable of returning to work in a full capacity. This is why i ask other people who have had any of these surgeries their limitations. Thanks for your help and support.
My son, who has n/tos and had surgery recently, was told no contact sports for one year - so I am going to extend that by logic and say you probably will have to avoid potential direct hits of any nature for a bit. He is a few months post-op (first rib and scalenes) and there is no limitation to his range of motion due to the surgery anymore. He had a few months of post op restrictions for amount of weight he could lift, carry, push, pull. They key to your jobs evaluation may lie in how much improvement you get from surgery. Also, I think each surgeon has his own approach to the post-op period insofar as restrictions and recovery, so it's best if you ask whoever will do your op.
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