Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-01-2012, 04:09 PM #1
Joshuamr Joshuamr is offline
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Join Date: Oct 2012
Location: New york
Posts: 39
10 yr Member
Joshuamr Joshuamr is offline
Junior Member
 
Join Date: Oct 2012
Location: New york
Posts: 39
10 yr Member
Default Neurogenic TOS

Saw my neurologist today and he finally agreed that I could have TOS and wants me to see a "shoulder specialist" with knowledge of TOS.....I was curious to know if neurogenic TOS would show a positive sign in the different pulse tests (I believe they are called Addison and wright tests). Or if they were inconclusive in determining NTOS. Also in regards to the different surgeries to correct TOS pec minor releases, first rib resection, or scalene release? I believe is the last one...what are, if any, permanent limitations with these surgeries? Any loss of or limited arm function? Or any things you shouldn't do due to the structural difference in that area? Right now I can't elevate my arm or shoulder without my hand completely locking up ( unable to open fingers while elevated) and experiencing pain burning sensation in the shoulder and scapula. Has anyone had loss of function that returned after any of these surgeries and to what extent? Been bounced from doctor to doctor for the last year with all normal tests (Emg w/ulnar nerve entrapment didn't explain my symptoms, mri of neck and brachial plexus, mri of shoulder). Been suspecting TOS after a friend who's a doctor mentioned it and I researched it. Crazy that all these people I have seen and not a whisper of TOS. When I started learning of the symptoms it was like a checklist of my problems. I'm thrilled to finally have my Neuro finally recommend seeing a specialist because my case is comp and without the recommendation they will never approve the visit. Good luck to everyone going through this because it does consume your life and drag you down. This site has helped so much for advice and just venting
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