Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-19-2012, 10:01 PM #1
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I'm confused.I went to a vascular surgeon today and they performed a ultrasound test which revealed no venous or arterial TOS. He said its possible that I have NTOS, but unlikely. He said that if the space of the thoracic outlet was large enough to not cause venous or arterial TOS it was unlikely that I had neurological compression. I was under the impression that NTOS was the most common syndrome presenting alone without venous or arterial. if thats the case, his statement would then be wrong? One of my symptoms is, upon elevation of my arm my fingers "lock up" and I am unable to open them until I lower my arm. He said he had never seen TOS present this way, and dismissed it as some other neurological disorder. He said I would have to see a neurologist to make those calls though. So I guess I'm left in further confusion yet again. Has anyone had a negative ultrasound with a positive NTOS diagnosis? And did everyone have to go to a vascular and neurologist separately to rule out the different types of TOS? Any input would be appreciated. Thanks.
Have you had EMG, x rays & MRIs, of all possible areas of concern, to rule out other possible factors?

Expert Physical therapy? Chiropractic?
Maybe a possible entrapped nerve that can be manually relseased?
My chiro adjusted my wrist, elbows, top rib, knee, foot, shoulder.. whenever I had a specific problem and needed those addressed.
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Old 11-19-2012, 10:56 PM #2
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Have you had EMG, x rays & MRIs, of all possible areas of concern, to rule out other possible factors?

Expert Physical therapy? Chiropractic?
Maybe a possible entrapped nerve that can be manually relseased?
My chiro adjusted my wrist, elbows, top rib, knee, foot, shoulder.. whenever I had a specific problem and needed those addressed.
Hey jo*mar, yes I had an Emg with irregular diagnosis (slight ulnar nerve entrapment and a slight slowing of the radial motor nerve on the effected side), but my neurologist said it didn't explain my symptoms. I had an mri of the neck with herniation and a bulging disc, but again the Neuro said it didn't appear to be pressing on the nerves. I had a mri of my shoulder to rule out rotator cuff tear. I had an mri of my brachial plexus in a normal laying down hands at side position, with negative results. I had 4 months of physical therapy, where the therapist was working on trying to adjust my rib on my effected side, which he said felt elevated. Left there in more pain most days. All of my symptoms are aggravated by the use/overuse of my effected side arm. Arm, hand, and shoulder weakness. Burning numbness in the scapula. And of course the inability to move my fingers when I elevate my arm.( excluding the little finger,which I can still move, hurray!). My Neuro mentioned NTOS and told me to see a specialist. Strike one with that today. Guess I'm just waiting for some kind of diagnosis so I know the best plan of attack,because right now I feel hopeless. I can control the pain sometimes, but never escape it. It's just extremely frustrating going from one doctor to the next hoping for an answer but instead getting another referral. I am trying acupuncture now which seems to relax me, but does nothing really to alleviate the pain. Sorry for the rant, sure I repeat myself in posts, but it helps to vent when you feel lost. Thanks for listening.
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