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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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11-14-2012, 02:41 PM | #1 | ||
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I developed a clot in my right upper arm, completely out of the blue back in august. I was treated with coumadin but was just diagnosed with Venous TOS last week. I live in south florida but have been in contact with Dr Donahue in Boston. I have heard excellent things and I am awaiting his opinion. I am willing to travel there to have the surgery, I was wondering if anyone here has done the same? He told me I should be able to return to Florida within 5 days assuming no complications. Can someone also fill me in on the follow ups post op? He mentioned a venogram a few weeks later and possible angioplasty.
any advice would be much appreciated. very hard to find someone who has gone through this and I am happy I found this forum. |
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11-14-2012, 03:13 PM | #2 | ||
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Venous tos also called effort thrombosis. It is related to compression of subclavian vein. It is a different process than neurogenic tos. As the compression occurs in a different space.
In vascular world, 2 approaches have been done. Transaxillary with no vein repair. Or paraclavicular with vein lysis and repair. Later one is a bigger procedure. Here are the pros and cons. Transaxillary, only takes rib and part of the scalene out. Does not fully free the vein up. So subsequent angioplasty maybe needed . It is a smaller operation with faster recovery. Paraclavicularn only done in a few major centers in the country. Allows full decompression of vein and the vein can also be reconstructed. Down side, bigger operation longer recovery, but better long term outcome. Either treatment can be considered standard of care. Only thing to keep in mind is dont let anyone put a stent in your vein. |
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"Thanks for this!" says: | Iris (12-03-2012) |
11-14-2012, 03:19 PM | #3 | |||
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[dont let anyone put a stent in your vein]
Is that for TOS pts only, and for vein only vs artery? Why? Elderly family friends have various stents, so I am just curious. I don't know if theirs are artery or vein though.
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11-14-2012, 03:29 PM | #4 | ||
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Most patients with tos and young and healthy. Stents in veins are likely to occlude when that happens the arm swelling will be worsened and also makes subsequent surgical treatment very difficult. For vascular tos, diagnosis is straight forward and surgery should be done asap. For venous tos, it is important to get the patients surgery done as soon as you can. With time the vein will reocclude and we have well published studies that shows the longer we wait for surgery the worse the outcome is (ie arm swelling and discomfort and likely to require further interventions) hope this helps. |
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"Thanks for this!" says: | Iris (12-03-2012) |
12-02-2012, 11:37 AM | #5 | ||
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12-03-2012, 06:35 PM | #6 | ||
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12-04-2012, 09:21 AM | #7 | ||
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12-04-2012, 04:52 PM | #8 | ||
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12-04-2012, 05:36 PM | #9 | ||
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12-04-2012, 05:41 PM | #10 | ||
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