Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-13-2012, 02:45 PM #11
daughterwithtos daughterwithtos is offline
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Join Date: Oct 2012
Location: Kansas City, MO
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10 yr Member
daughterwithtos daughterwithtos is offline
Junior Member
 
Join Date: Oct 2012
Location: Kansas City, MO
Posts: 8
10 yr Member
Default Recovery from Surgery Tips

My 17 year old daughter had same surgery with Dr. Thompson on Tuesday, December 3rd. She went into surgery at 7:35 am and had about an hour prep time. The nurse called to inform me that they started the surgery at 8:45 and I got another call at 10:30 informing me the muscles and rib were removed. Dr. Thompson called me at 12 to give me the details of my daughter's status. Both of her scalene muscles were very large for her size and she had scarring at her nerve roots. We were able to visit her about 45 minutes to an hour later.
Tips:
You will need to provide a urine sample. (my daughter went earlier and could not provide a sample - think it was the reason it took them awhile longer to start the operation.
Take stool softeners NOW. OxyCotin really messed with my daughter's constitution.
My daughter did not like the taste of the water from the plastic cup they provided. She had an easier time drinking from bottled water.
My daughter really appreciated having a headband to keep her hair out of her face.
You will be given ice chips then jello and other clear liquids until they feel like you can handle solid food. You will be on a low fat diet. They will be monitoring how the solids affect your drain bulb which will in turn determine when you can be released.
Your throat will be sore from the tube and you may feel nauseous from all the medicine and anesthesia. They have medicine for it. The nurses come in every 2 hours the first day or two then every 4 hours after that.

My daughter had a hard time on Friday (3 day post-op.) They re-catheterized her and put her back on the IV. She felt nauseous and had a hard time swallowing her medicine and would not eat. We also put her back on the medications she had been taking for over a year (Cymbalta, Lyrica and Nortripyline). She turned the corner within 6 hours. Don't know which variable worked. Dr. Thompson does not typically release patients over the weekend. I felt very comfortable having her stay. She was released Monday morning and we visited Dr. Thompson in his office early afternoon and they removed the drain bulb and took x-rays. You are asked to stay in-town (nearby) for 24 hours to make sure there are no complications from the drain site.

We left for Kansas City (4 hours drive) Tuesday morning. We walked the dogs Wednesday morning. She is eating, texting and visiting with friends. She is sore from the surgery but can use her arm and hand with no problem.

Constipation had been her main problem since we've been home. She is on OxyCotin slow release, OxyCotin 5mg as needed and Robaxin along with tylenol, ibuprofen and senna. Pain is not really an issue.
My biggest advice is to make sure you have help (you are not suppose to lift anything over 5 lbs.) and not be so hard on yourself. Let people help you and it is O.K. to be in chaos for a couple of weeks. Just simplify you life, rest and enjoy your children.
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