Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-30-2012, 03:51 AM #1
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Default Breathing issues?

Does anyone have or get any kind of breathing issues from their TOS?

Since my shoulder injury, I have "the weird breathing thing" where, when sitting/reclining/laying at certain angles (not all, just some) my breathing slows down and gets really shallow. I have to consciously work at breathing normally. Changing my position even just a little can fix it.

I also can end up short of breath over absolutely nothing, yet other times can do stuff that should absolutely floor me, but doesn't.

If I laugh, really fully belly-laugh laugh, I can't breathe. Not a throat thing, a whole lung-body lock up, just can't move the muscles to breathe. Often turns into a vicious, choking, suffocating cough. Yet again, not a throat thing, a body/breathing system thing.

Went through every lung test there is, doctors cannot say why any of this happens. Started the "stress" excuse. But the slow shallow barely breathing thing even happened when under & coming out of anesthesia (when, to try and get me to wake up faster, they started propping up the bed a bit and hit one of the bad angles), how could I be "expressing stress" when I am drugged unconscious? (the doc said, "the body does strange things". yeah. sure.)

I have had blood pressure and heart rate problems as feedback from moving the wrong way and triggering the TOS, (mine is from excessive scar tissue underneath where the broken collarbone & repair surgery was) wondering if maybe the breathing thing is coming from the same place--nerves getting sometimes caught in the TOS mess?
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Old 12-03-2012, 01:38 AM #2
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I guess not?
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Old 12-03-2012, 03:48 PM #3
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Default Breathing issues

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I guess not?
Hi

Yes, I have had & occasionally will have shortness of breath from TOS .....am almost 2 years postop. When these issues arise I find that I do Diaphramatic breathing which helps to calm me down as it can be stressful & a bit scary. The phrenic nerve was injured and was told it takes a long time for the nerve to "heal".
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Old 12-04-2012, 07:17 PM #4
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Before I had my surgery I had bouts of not being able to catch air and would have to swallow and gulp to gasp for air. Would happen when I was at work as but was the worst when trying to fall asleep. Hope this helps.

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Old 12-04-2012, 08:59 PM #5
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Before I had my surgery I had bouts of not being able to catch air and would have to swallow and gulp to gasp for air. Would happen when I was at work as but was the worst when trying to fall asleep. Hope this helps.

Amber
I also feel like I cannot breath its like I have consciously make an effort to breath and was wondering if I had damage to the phrenic nerve.
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Old 12-04-2012, 11:34 PM #6
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Not sure. Mine has since corrected itself since the surgery. It was very frustrating...sometimes I would even be at my job on the phone sitting up and talking and have to put my mute button on so I could try to gasp for air...freaked me out. Hope things get worked out for you tic2. Sounds like we have a lot of unfortunate symptoms in common.

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I also feel like I cannot breath its like I have consciously make an effort to breath and was wondering if I had damage to the phrenic nerve.
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