[Haute Mess]

I notice quite of few of you describe your TOS as NTOS with a vascular component, however the vascular surgeon I saw implied you either have it or you don’t. Your arm is either near death with gangrene or perfectly fine. Basically you can’t have a "little vascular" TOS. I have a cervical rib which would predispose me to ATOS but right now my vascular symptoms are mild (weak pulse and I get throbbing near my collarbone without the lump) and for years I always felt like I had poor circulation in my arm. The vascular surgeon never performed any tests just asked if my arm was cold and discolored. I should ask for a second opinion but I am moving out of the country soon and out of time.

If you have a vascular component what is your experience with being diagnosed?