Originally Posted by Sheri_TOS

Starfish,

Your descriptions sound similar to what I went through before I opted for surgery for arterial TOS. I am six months post op and glad I did it. My arm feels so much better and alive. I had surgery for severe nTOS on the other side eight years ago and yes, the symptoms are different. That time, the pain was horrible, my hand had clawed up, the hand and forearm had significant atrophy, etc. The same surgeon did both sides.

From my own experience, you may not realize the full extent of symptoms you are dealing with as you're dealing with the stuff on a day-to-day basis. They originally diagnosed me 4 years ago but said it was my decision when and if I opted for surgery. I eventually returned due to the progression of symptoms. What I didn't expect was the vascular conditions (impact on the artery and vein) to worsen so severely.