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-   -   Getting worse (https://www.neurotalk.org/thoracic-outlet-syndrome/181997-getting-worse.html)

Iris 01-07-2013 08:25 PM

Quote:

Originally Posted by Joshuamr (Post 945412)
Dr Donahue is who I meant to say in the last post.

You are right to want to see him. He is amazing. And does not jump to surgery

16rhonda 05-20-2013 12:19 AM

Quote:

Originally Posted by Joshuamr (Post 945132)
Hello everyone. I have been experiencing increased pain levels lately, along with visible thenar atrophy. There are just wrinkles in my skin on my right hand where my thenar muscle used to be. I am still getting sent from doctor to doctor. Everyone scratching their head when all the tests come back normal. They want to repeat the Emg now that my muscle is wasting. I have been experiencing increased pain in my shoulder/clavicle area lately. The pain feels deep and radiates into my scapula region and trapeze muscle. What has alarmed me more lately is the feeling I've been getting in my pec/chest area. It's like a tight burning pain. Sometimes it feels difficult to breathe it gets so tight. Is this a normal symptom of NTOS? Has anyone experienced this pain in the chest area. I couldn't sleep at all last night....the pain started in my shoulder and just started getting worse. The burning pain was unbearable. My forearm has been so tight and painful. Feels cramped. And the usual weakness and fatigue in my grip strength and arm. My arm. Feels like it just wants to hang. I carried my 18month old daughter yesterday for just a minute and my arm felt like I just did a heavy workout. Burning pain down the arm, and so fatigued. Then the scapula pain followed. Kinda just venting and wondering about others experiences with these pain patterns. Thanks.

Hi there, I'm new to this site & just read ur post. Ur clavicle/shoulder deep pain & burning w/increased pain w/breathing in chest area, sounds exactly what I've been exp.past 2 wks. I am 14 mos. Postop costcotransversectomy/1st rib resection, scalenectomy, neuroplasty. I exp. Chest pains bf my surgery but this isxworse feeling Deep under clavicle. It is worse when lying down.
I was wondering if u had surgery yet?
Hope u are doing better! Nothings worse when u can't even take care of ur own children.


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