I have had TOS for 8 years and just in the past year have finally narrowed it down to actually being TOS. I have been going to PT for about a year now and the therapist wants to take a break and come back to it later.

I was improving with therapy but now that I won't be going any more, combined with the fact that I am worse again after stretching my limits just a little......I am really scared again.

I can get along in life OK. There are many activities I cannot do and I have had to change my career but I get generally get along OK.

I wonder if I should try surgery so I can be 100 percent OK and maybe change my job to a computer job again and to also be able to do things like reach above my head without my blood going low in my hands. haha. The simple things in life!

I understand I will most likely try more non surgery things (edgelow?) and more PT? in the next year or just simply trying to heal or breathing, etc.

I am very curious if surgery EVER works for anyone? Scar tissue always comes back?

Some people regret surgery?

The doctors are no help in the decision of course and really, only scare me away from it so far. (i've been able to talk more about a car purchase with a dealership than a surgery with a doctor) !!!!!