Home Menu

Site Navigation



Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
NeuroTalk Support Groups > > >

flare meds that dont require you taking them EVERY day

Reply
Page 1 of 2 1 2
 
Thread Tools Display Modes
Old 01-15-2013, 10:48 AM #1
mspennyloafer's Avatar
mspennyloafer mspennyloafer is offline
Senior Member
  
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
mspennyloafer mspennyloafer is offline
Senior Member
mspennyloafer's Avatar
 
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
Unhappy flare meds that dont require you taking them EVERY day
i only flare up really badly once a month now, if that

what kind of meds would help me calm my nervous system down that don't require you take the pills daily?

i like lidocaine patches but my flare was too widespread id have to use a whole box
__________________
last felt my fingertips august 2010
.
mspennyloafer is offline   Reply With QuoteReply With Quote

advertisement
Old 01-15-2013, 11:46 PM #2
nospam's Avatar
nospam nospam is offline
Member
  
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
nospam nospam is offline
Member
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
Default
Quote:
Originally Posted by mspennyloafer View Post
i only flare up really badly once a month now, if that

what kind of meds would help me calm my nervous system down that don't require you take the pills daily?

i like lidocaine patches but my flare was too widespread id have to use a whole box
Injection of Medrol or Toradol. Valium or Ativan. See your doctor of course.
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
nospam is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mspennyloafer (01-16-2013)
Old 01-16-2013, 07:35 PM #3
mspennyloafer's Avatar
mspennyloafer mspennyloafer is offline
Senior Member
  
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
mspennyloafer mspennyloafer is offline
Senior Member
mspennyloafer's Avatar
 
Join Date: Oct 2010
Location: ga
Posts: 1,471
10 yr Member
Default
Quote:
Originally Posted by nospam View Post
Injection of Medrol or Toradol. Valium or Ativan. See your doctor of course.
Thank you.

I have some old klonopin I take. I wonder if I should ask for more of it or Ativan or valium
__________________
last felt my fingertips august 2010
.
mspennyloafer is offline   Reply With QuoteReply With Quote
Old 05-30-2013, 04:10 PM #4
nospam's Avatar
nospam nospam is offline
Member
  
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
nospam nospam is offline
Member
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
Default
I am learning more about benzodiazepines. Klonopin and Valium are long acting while Ativan is short acting but takes effect quicker. I believe this makes Ativan best for flares. I took someone's Ativan when I forgot my Valium at home and it worked great.
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
nospam is offline   Reply With QuoteReply With Quote
Old 05-30-2013, 06:11 PM #5
jkl626 jkl626 is offline
Member
  
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
jkl626 jkl626 is offline
Member
 
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
Default
Quote:
Originally Posted by mspennyloafer View Post
i only flare up really badly once a month now, if that

what kind of meds would help me calm my nervous system down that don't require you take the pills daily?

i like lidocaine patches but my flare was too widespread id have to use a whole box
There is something new called DM/Q that is supposed to help desensitise the nerves. The DM is same stuff thats in Robitussin DM. The Q is Quinodine. I cant take the Q so I am trying to just get the DM from a compounding pharmacy, but they are having trouble getting it. My nerve flares are rare now too-usually exacerbated by certian pt or massage, so avoiding those now.I am also taking Alph-Lipoic acid (natural) which is supposed to help dull the nerves also.
jkl626 is offline   Reply With QuoteReply With Quote
Old 06-01-2013, 11:09 AM #6
16rhonda 16rhonda is offline
Member
  
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
Angry Dm/q
Quote:
Originally Posted by jkl626 View Post
There is something new called DM/Q that is supposed to help desensitise the nerves. The DM is same stuff thats in Robitussin DM. The Q is Quinodine. I cant take the Q so I am trying to just get the DM from a compounding pharmacy, but they are having trouble getting it. My nerve flares are rare now too-usually exacerbated by certian pt or massage, so avoiding those now.I am also taking Alph-Lipoic acid (natural) which is supposed to help dull the nerves also.
Iwas wondering if u know exactly what u call this med., did u spell it wrong? I cant find it in drug library. Do neurologists know about this drug?
I'm desparate., I have Peroneal n. Comp., Tarsal Tunnel, Bilateral Carpal Tunnel & TOS.
Thanks For any Info.!!
16rhonda is offline   Reply With QuoteReply With Quote
Old 06-01-2013, 12:10 PM #7
nospam's Avatar
nospam nospam is offline
Member
  
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
nospam nospam is offline
Member
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
Default
Quote:
Originally Posted by 16rhonda View Post
Iwas wondering if u know exactly what u call this med., did u spell it wrong? I cant find it in drug library. Do neurologists know about this drug?
I'm desparate., I have Peroneal n. Comp., Tarsal Tunnel, Bilateral Carpal Tunnel & TOS.
Thanks For any Info.!!
I think it's Zenvia. But I haven't found much info at all on it and I doubt it will work just taken occasionally for flares. Possibly not for TOS or spinal neuropathies at all.

Quote:
Originally Posted by mrsD View Post
About Zenvia:
Quote:
About Zenvia

Zenvia is a combination of two well-characterized compounds, the active ingredient dextromethorphan, and the enzyme inhibitor quinidine, which serves to increase the bioavailability of dextromethorphan. The first-in-class drug candidate is believed to help regulate excitatory neurotransmission in two ways, through presynaptic inhibition of glutamate release via sigma-1 receptor agonist activity, and through postsynaptic glutamate response modulation via uncompetitive, low-affinity NMDA antagonist activity.
It is only dextromethorphan... DM found in cough preps in this country. Some studies show high dose DM might help PN but
results are conflicted. I believe Nide44 tried it without success.
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
Last edited by nospam; 06-01-2013 at 12:30 PM.
nospam is offline   Reply With QuoteReply With Quote
Old 06-02-2013, 04:45 PM #8
jkl626 jkl626 is offline
Member
  
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
jkl626 jkl626 is offline
Member
 
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
Default
Yes, Marc is correct. Zenvia. My Neurologist had samples of it. It is supposed to help prevent flares, but I dont think it would help once you get the flare. I am waiting for my compounding pharmacy to make it without the quinidine for me-if I ever get it I will report back. You can also get neurontinin cream at a compounding pharmacy. i use a neurontin and flexeril cream with an anti-inflammatory in it too.
jkl626 is offline   Reply With QuoteReply With Quote
Old 03-05-2014, 02:18 PM #9
nospam's Avatar
nospam nospam is offline
Member
  
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
nospam nospam is offline
Member
nospam's Avatar
 
Join Date: Feb 2012
Location: Orange County, CA
Posts: 835
10 yr Member
Default
Quote:
Originally Posted by jkl626 View Post
Yes, Marc is correct. Zenvia. My Neurologist had samples of it. It is supposed to help prevent flares, but I dont think it would help once you get the flare. I am waiting for my compounding pharmacy to make it without the quinidine for me-if I ever get it I will report back. You can also get neurontinin cream at a compounding pharmacy. i use a neurontin and flexeril cream with an anti-inflammatory in it too.
Anyone tried Zenvia or plain old Dextromethorphan yet. I stumbled upon the link below and recalled this thread.

http://bpainfreetherapy.hubpages.com...r-Chronic-Pain
__________________
Marc

.


ACDF C5-C6-C7 2/28/11

.


.


.


.
nospam is offline   Reply With QuoteReply With Quote
Old 03-05-2014, 06:03 PM #10
jkl626 jkl626 is offline
Member
  
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
jkl626 jkl626 is offline
Member
 
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
Default
Quote:
Originally Posted by nospam View Post
Anyone tried Zenvia or plain old Dextromethorphan yet. I stumbled upon the link below and recalled this thread.

http://bpainfreetherapy.hubpages.com...r-Chronic-Pain
Thanks for posting the article. I had trouble getting it because it has to be compounded. So I decided to go on Neurontin instead. Its worked well for me and also helps with Hot flashes. I only take it at night but am thinking about starting it during the day too. Plus I hate the way cold medicine makes me feel. I am not ruling it out eventually. Also some one mentioned Claritin to me for nerve pain.
Last edited by jkl626; 03-05-2014 at 06:05 PM. Reason: Added more info
jkl626 is offline   Reply With QuoteReply With Quote
Reply
Page 1 of 2 1 2

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone taking any meds for concentration just not right Traumatic Brain Injury and Post Concussion Syndrome 12 05-23-2012 04:36 PM
I was not taking my meds right.... bizi Bipolar Disorder 9 08-13-2010 10:28 AM
i dont have health insurance anymore and i need my meds NOW melxphantom Epilepsy 10 07-19-2010 08:57 PM
So after all these years, Dr is taking me off all meds? madamlash Parkinson's Disease 6 06-14-2010 12:49 AM
Horrible flare...dont know what else to do.... firegirl Reflex Sympathetic Dystrophy (RSD and CRPS) 11 05-30-2010 11:21 AM


All times are GMT -5. The time now is 05:47 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home