Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 01-30-2013, 09:44 AM #1
Anne4tos Anne4tos is offline
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Default Gralise?

Has anyone tried this medication for TOS?

My Pain Clinic gave me 2 packs of it yesterday to try as the cost of my Lyrica went from $25 to $310 per month. From what I can figure out from the packaging and the minimal information I can find online, it's a "new" drug from an old source. It's Gabapentin which has been slightly reformulated to act as an extended release. You would take your full dose at one time only (ie. 3-600mg pills).

To me, this does not look like a solution to my problem. It's purely Gabapentin name branded, so the pharma company can make a profit. There was also a $75 per month savings card in the pack, so this tells me it's not classified as a generic and probably priced similar to Lyrica.
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Old 02-03-2013, 02:12 AM #2
Nolina Nolina is offline
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Default Yes I've tried it

Hi - I recently tried Gralise - also a freebie trial "starter kit" offered by my Pain doc. I was reluctant to try it since I had been on a high dose of Neurontin at the very beginning of my TOS road and it didn't help then, i didn't see why Gabapentin would help now, but - was willing to try it to appease them. (You are correct that it's a reformualted "extended release" Neurontin, and as far as i know, there's no generic available yet.)

I didn't even finish the starter pack. Aside from the fact that it terribly disrupted my sleep (even more than normal) yet also managed to give me nightmares, the real problem was the cost. Midway through the starter pack I realized I should price it out to see if it was even feasible. Good thing I did: The monthly cost would have been $125 out of pocket even WITH good insurance (something like $500 per month w/o insurance). The side effects probably would have eventually gone away, but I knew it wasn't even worth going down that road because there's no way I could afford that.

Good Luck to you! Hope you find a decent solution.
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Old 02-05-2013, 11:06 PM #3
Anne4tos Anne4tos is offline
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Default

Everything you wrote is exactly what I was fearing with this drug. I don't remember what regular gabapentin runs at the pharmacy, but I know it's no where near $500/mo. My only complaint about Lyrica was the cost, so being given an even more expensive drug by my pain clinic annoys me a tad.

I did find a good solution and will be back to paying $25/mo for Lyrica. I'm not a huge fan of time released medication as the effectiveness seems to decay with passing time. Will Gralise be the "new" Lyrica doled out by Doctors?
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