Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 02-16-2013, 12:40 PM #11
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Lidoderm patches are awesome

Also you don't want to push shoulders and down and back, That can actually cause traction

You should feel your shoulder wrap around your ribs and naturally move back. It's a really small subtle motion. I figured out how to do it by looking at my shoulders at the side in the mirror
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Old 02-16-2013, 01:30 PM #12
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There used to be something in the UK where, if you needed help and had children under the age of 5, there were volunteers who might be able to help in some way. Might be worth asking your health visitor re this. I asked, but my child was over 5, so not available to me. Don't know if that's still going. Can't remember what it was called, although have been googling. You could ask social services for a care needs assessment, and highlight the impact that your health is having on your relationship, too. Have found on other sites that they do try to keep families together, if possible. I empathise with the guilt re children, too - I can't do many things and get bad-tempered easily. But at the end of the day, they do still have you and I think that is the most precious gift you can give them. Lots of

p.s. I find Cordless T.E.N.S Mini Machine (I got mine from amazon, but think lloyds pharmacy do, too) a real help. I used Lidocaine patches for a long time, but find the TENS more helpful, for me, and couldn't use both at once (because in same place - very sticky!). I would push for urgent pain clinic referral. Don't know what your GP is prescribing for pain, but mine wouldn't go beyond cocodamol and tramadol (which I couldn't tolerate). There is much stronger pain relief out there, but my GP wanted the assurance to come via the pain clinic for those. Pain clinic likely to tell you to pace - do small amounts and then rest and don't push through. Sooo frustrating, but I have found that helps. And lying face down, periodically, like on a physio couch helps me. I have no idea why, but seems to rest the muscles a little. I don't know what would help with getting children dressed and pushing a buggy, both of which I really struggled with. I rely on Tesco's home delivery and they bring it right into the kitchen.

Last edited by MarketRisk; 02-16-2013 at 01:51 PM.
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Old 02-16-2013, 11:21 PM #13
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Quote:
Originally Posted by MarketRisk View Post
There used to be something in the UK where, if you needed help and had children under the age of 5, there were volunteers who might be able to help in some way. Might be worth asking your health visitor re this. I asked, but my child was over 5, so not available to me. Don't know if that's still going. Can't remember what it was called, although have been googling. You could ask social services for a care needs assessment, and highlight the impact that your health is having on your relationship, too. Have found on other sites that they do try to keep families together, if possible. I empathise with the guilt re children, too - I can't do many things and get bad-tempered easily. But at the end of the day, they do still have you and I think that is the most precious gift you can give them. Lots of

p.s. I find Cordless T.E.N.S Mini Machine (I got mine from amazon, but think lloyds pharmacy do, too) a real help. I used Lidocaine patches for a long time, but find the TENS more helpful, for me, and couldn't use both at once (because in same place - very sticky!). I would push for urgent pain clinic referral. Don't know what your GP is prescribing for pain, but mine wouldn't go beyond cocodamol and tramadol (which I couldn't tolerate). There is much stronger pain relief out there, but my GP wanted the assurance to come via the pain clinic for those. Pain clinic likely to tell you to pace - do small amounts and then rest and don't push through. Sooo frustrating, but I have found that helps. And lying face down, periodically, like on a physio couch helps me. I have no idea why, but seems to rest the muscles a little. I don't know what would help with getting children dressed and pushing a buggy, both of which I really struggled with. I rely on Tesco's home delivery and they bring it right into the kitchen.
Bless your heart, too.

We have a Swanns truck round here, I bought groceries off of when I couldn't manage shopping.

It's good the UK offers help to children in these situations.

I couldn't imagine meeting their minimal needs t my worst.

I have two beautiful grandchildren that I spent time with, but afterwards, I paid a painful price. They're worth it, though. love them dearly.
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Old 02-25-2013, 04:19 AM #14
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Sorry its taken so long for a response! Not managed to be on the main computer long enough!

Quote:
Originally Posted by Jo*mar View Post
Look at the ball one & the foam roll one-
http://neurotalk.psychcentral.com/album.php?albumid=422

I prefer these kinds to open the area vs arms up against the wall as my bloodflow still gets cut off too.
let gravity do the work for you so you can relax and let the body change slowly

and if those seem to be too much for you , just lay on the floor in the corpse yoga pose and do the diaphragmatic breathing
then when that is easy and totally comfortable for you then roll up a towel to use like the foam roll.


If only 5 mins a day many x's a day is what is good for you then don't push for more until no symptom are increased.

Oh and explore Sharon Butler's website for good tips & explanations about sticky tissues.
www.selfcare4rsi.com
Thanks that was helpful. Will check out the website too.

Quote:
Originally Posted by kellysf View Post
Joanna,

I sometimes get sharp pain and a grabbing feeling at the bottom of my ribs. Following my surgery, I also had some diaphragmatic disfunction because the phrenic nerve was stretched. This was supposed to resolve over time. I was told this is a rather common side effect of the surgery. You may have experienced something similar which might have left you feeling short of breath.

Good luck,
Kelly
Hopefully that is it... I wish they would tell you these things. I feel like I went into these surgeries blind and came out just as blind!
Thanks

Quote:
Originally Posted by (Broken Wings) View Post
I avoid mice, entirely. Working on laptop, with trackpad, external monitor raised to comfortable eye level. you can get full-size keyboards, with track pad...

I do have to use them on one sys, but I don't use it too much.

Oh. and if a key, like overstrike, bugs me, I remove it from my keyboards

At one time, I had placed a long dressing mirror at the side of my workstation. It was my posture police!!!

Did I mention Lidoderm patches 5%.

They are a lifesaver.

I really was suggesting some family member for you, but more for our kids.

Don't feel guilty. I know you can't do a lot of necessary things for them. Honestly, I don't know how you're doing what you're doing. You're made out of though stuff. If I had small children, I would have to have help. Man, just a few years ago, I couldn't handle all you're doing.

Just mealtime is hard on TOS. Paper plates and cups, if possible.
I am looking into a trackpad mouse, but have to order from the States and that will only happen once the bank balance is a little happier!!

I will talk to my doctor about patches, see if it is something we can get over here... I remember when I wanted zofran patches it wasn't a possibility.

A mirror is a good idea... We have very few in the house!

Thank you for your kind words! It all helps I have the health visitor coming on monday and I am going to speak to her about any help/support that may be available... I am not good at asking for help. It feels like a failure on my part. I feel like I should be able to do more.

Quote:
Originally Posted by mspennyloafer View Post
Lidoderm patches are awesome
Also you don't want to push shoulders and down and back, That can actually cause traction

You should feel your shoulder wrap around your ribs and naturally move back. It's a really small subtle motion. I figured out how to do it by looking at my shoulders at the side in the mirror
This is one thing I am finding tough... Not to pull my shoulders down! Thanks for the advice
Mirrors seem to be a recurrent theme.

Quote:
Originally Posted by MarketRisk View Post
There used to be something in the UK where, if you needed help and had children under the age of 5, there were volunteers who might be able to help in some way. Might be worth asking your health visitor re this. I asked, but my child was over 5, so not available to me. Don't know if that's still going. Can't remember what it was called, although have been googling. You could ask social services for a care needs assessment, and highlight the impact that your health is having on your relationship, too. Have found on other sites that they do try to keep families together, if possible. I empathise with the guilt re children, too - I can't do many things and get bad-tempered easily. But at the end of the day, they do still have you and I think that is the most precious gift you can give them. Lots of

p.s. I find Cordless T.E.N.S Mini Machine (I got mine from amazon, but think lloyds pharmacy do, too) a real help. I used Lidocaine patches for a long time, but find the TENS more helpful, for me, and couldn't use both at once (because in same place - very sticky!). I would push for urgent pain clinic referral. Don't know what your GP is prescribing for pain, but mine wouldn't go beyond cocodamol and tramadol (which I couldn't tolerate). There is much stronger pain relief out there, but my GP wanted the assurance to come via the pain clinic for those. Pain clinic likely to tell you to pace - do small amounts and then rest and don't push through. Sooo frustrating, but I have found that helps. And lying face down, periodically, like on a physio couch helps me. I have no idea why, but seems to rest the muscles a little. I don't know what would help with getting children dressed and pushing a buggy, both of which I really struggled with. I rely on Tesco's home delivery and they bring it right into the kitchen.
I have health visitor coming tomorrow after my recent Dr's appointment... We will see if there is anything that can be offered.
I am such a private person... We will see though.
I have been offered something where someone can come round once a week for a couple of hours and look after the kids while you do something, or they can accompany you to a group or shopping... But I really didn't like the thought of that much.
I have a TENS machine somewhere, I will have to find it and give it a go. Thanks for the reminder!
I am only taking paracetamol... As I am breastfeeding. Which I don't want to stop if at all possible... But I am just going to have to see how it goes. Before I got pregnant I was prescribed Oxycodone, which helped more than anything else, but still not very effective. I don't really like to take narcotics much
Tesco home delivery here too! I couldn't go to the supermarket for a full shop, just pushing the trolley round would be very difficult.

Thanks again all
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