[law76]

SINCE THE OTHER SITE IS DOWN...I GOT HURT AT WORK ABOUT FOUR YEARS AGO..OFF WORK FOR TWO.....ALSO HAVE HERNIATED DISCS IN NECK AND FYBRO...POST-SURGICAL FOR RT SIDE RIB RESECTION.

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TOS main discussion section
https://www.neurotalk.org/thoracic-outlet-syndrome/

Start your own thread - New Thread link is here
https://www.neurotalk.org/newthread....newthread&f=24

[DDayMBB]

Laura, I am bi-lateral, left side more so than right due to a work related accident and still haviving an up hill battlre with the attorneys...I have several issues going on with my neck though these have been present for more that the last 10 years and do not even come clsoe to the TOS BEAST... MARK-n-GOOBER

[Edelweiss]

After an accident I had 2 shoulder surgeries on the right side (capsule shrinking, subscapularis-reconstruction, long-biceps-tenodese,..) and later I developped TOS. I have arterial TOS (arteria subclavia is squeezed, angiography showed this very clearly and every 6 month I have a control to see if the artery is intact) and from the "inside"-scars from the shoulder surgeries the nervs are irritated also.

Therapies: actually osteopathie, alexander and rang dröl
Meds: not constantly only if the pain is too strong, sometimes muscles relaxing meds

[dawn3063]

I have Bilateral Thorasic Outlet.. Post operative Jan 06 for right sided scalenectomy and neuroplasty.. Fibro, Split Sciatic nerve and Failed C5 and C6 fusion and I am currently awaiting autherization from W/C for repair of failed fusion..
((Hugs)) Dawn

[tshadow]

Hi guys, it's me TamaraShadow!!! Somehow I couldn't get my old name back...

Right now my issues are: post surgery pain to right side, TOS;

considering whether to proceed to surgery on the left before symptoms become very bad as they did on the right; or wait and see;

lung problem (adelectosis) being diagnosed and treated - have to go through private insurance as work comp is ignoring it;

just got 10 or 12 visits of psych counseling - YAY! I need it.

Severe fibromyalgia in whole body.

RSD has retreated a lot, just a little on arms and back of calves occasionally.

Missed you all SOOOOOO much. Still sleeping two or three hours here and there, which really messes up the day time. (I am doing this at 4 AM and need to take my pills for pain as it's sky high.) So bye, bye!

PS Laura, saw you called today, I was sleeping most of afternoon / PM time. Will try to call back soon.

[Wittesea]

Hi everyone It's good to see so many familiar names here.

Since we are doing introductions....

I'm Liz, with no official TOS diagnosis but a doctor who said "probable Left sided TOS". I never went to a specialist to get 'officially' diagnosed because it doesn't really matter anyway (since I could never and would never have surgery anyway). Based on symptoms, the doc who said 'probable TOS' says it is neurogenic TOS. So I'm just gentle with my arm to try not to make it any worse.

I have Fibro, and connective tissue disease, and "possible MS" and a variety of other stuff for which I take a variety of meds.

Nice to be able to see everyone again and reconnect
~Liz


PS to Tamara --- the reason that you couldn't sign-in as TamaraShadow is because these are completely different forums with no affiliation to braintalk or John Lester, so there is no database that remembers anyones usernames from the original BrainTalk.

This forum was set up by a man named DocJohn who runs the website and forums at PsychCentral and he set them up because he was concerned with BT being offline for so long with no updates, so he set up this BT2 for the BT members to be able to get back in touch while the original BT is offline/broken/gone. He named it BrainTalk2 so that people could easily find it.

Some people want him to keep this place open even after the original BT is fixed (there is a poll about that in Forum Feedback along with lots of posts as to peoples reasons for wanting this place to remain open) and if it does remain open after BT is back online, DocJohn said he would then change the name to something different.

You could use the name TamareShadow here, you just have to newly register it the same way you newly registered tshadow.

[irundawg]

Originally Posted by Edelweiss

After an accident I had 2 shoulder surgeries on the right side (capsule shrinking, subscapularis-reconstruction, long-biceps-tenodese,..) and later I developped TOS. I have arterial TOS (arteria subclavia is squeezed, angiography showed this very clearly and every 6 month I have a control to see if the artery is intact) and from the "inside"-scars from the shoulder surgeries the nervs are irritated also.

Therapies: actually osteopathie, alexander and rang dröl
Meds: not constantly only if the pain is too strong, sometimes muscles relaxing meds

Hey Edelweis, i've been battling the TOS syptoms for 2 years, can't get anyone to say for sure or not if it is TOS. my symptoms are tingling in the arms shoulders fingers with severe neck pain at times, tightness around the arm pits and chest area, at times same symptoms as a heart attack, several stress tests done, ekg's and nothing comes back negative. how about your symptoms... fill me in. new to this site, hungrey for fellow tos info..
thank

[evie]

Hi all

My name is eve and I live in Switzerland. As some of you know, I have bilateral, wide cervical ribs and vascular (arterial) TOS which, however, is but a small problem area in my body that seems to be intent on picking rare forms of joint, connective tissue and other problems. The latest one of these is hnpp which was confirmed by genetic testing just 2 weeks ago. It is the cause of quite a few of my neurological problems and mimicked neurological TOS enough to fool the docs for 4 years.

I've had too many surgeries in the past and already have too many lined up for the future...if ever I get a spare decade, I might tend to all of them and get myself fixed up for good at which point I will change my name to bionic or cyber woman. In the meantime, I just try and live as normally as possible....a little bit more difficult right now as I have received the labels "incurable and untreatable" and am still digesting that.

As the choice in dealing with all of this seems to be to cry or laugh, I try hard to laugh...it mostly works but people have told me that, for some weird reason, my humour keeps getting blacker and blacker...

cheers
eve

[nidia74]

Well, here's my story...the short version:

Injured July,2002: 2 door size boxes and weighing 120 lbs. fell against my back hitting all of it in entirety including my neck. I went to Concentra, then Dr. Weddington for Thoracic/lumbar/cervical strain: PTand acupuncture & went back to "modified" work after a few weeks. R arm began to hurt 1/03, complained to work& Dr without any response, continued getting worse, switched Dr's, Dr. Swartz, MRI 4/03:tendonitis in R shoulder/rotator cuff, bulge in neck. Dr only offers meds & off work May/03. Changed Dr.'s again/Dr. Handleman: osteopathic manipulations &prolo injections,acupuncture & PT. Feeling best since injury until Dr. got a crush on me/had to seek new Dr., wc took 4 mos to authorize, got increasingly worse. Saw Dr. McClure d/x TOS w/ MRI/MRA Nov/04. Cervical epidural Nov/04.Dr. Hines for pain mgmt. Dr. Rosales for cognitive therapy/psych. S/x on R shoulder 1/05 w/Dr. Greenwald. Cervical epidural 3/05. 12/05. Moved to SLC. Dr. Giovanniello/SLC treating Dr, cervical epidur. 1/06 & 3/06. Pool therapy/PT for TOS. Dr. Shulimson for cognitive therapy/psych. Cervical Facet block injections 8/06, authorized for rib resection/scalenectomy 10/4/06.
So a week to go for surgery!!

[gibbrn]

Welcome to the communiy!! We'll try to help if we can!!

Victoria