Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-22-2006, 02:00 PM #21
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Hi all not sure if you remember me has been a while since I posted.... couldnt find braintalk, but glad to be here now!

I had work injury nov1 2002 lifted a patient up from a toilet and injured neck and back .....tos dx by three diff doc's after getting out of the wsib system. was initially allowed wsib then dec 15 2003 they denied me once tos dx. I have since won the appeal and am now approved again wsib. it is more paperwork and fighting.....the usual you all know....

Had scalenectomy and 1st rib resection in July 2005. symptoms all went away until doing physio started in Oct 2006. They increased what I was doing and all symptoms came back....was off all my meds now back on many new ones....Lyrica, amitriptyline, diazepam, flexaril, axert.......tramacet for pain relief....yeah right.....lol

went to see surgeon this week and he said not tos my surgery would have fixed it if it was.....hmmmm guess he hasn't read the failure rate of TOS surgery. Still have vascular symptoms as well as neurogenic......is tos.....he is sending me to orthopedic and neurologist to see if other pathology....hello already done veinogram pre op dx is tos.....getting pi%$#E off any how long story short.......still fighting like hell for pain relief...oh and he said I have chronic pain syndorme!!!!!!!!!

Victoria rn
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Old 09-22-2006, 10:19 PM #22
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Victoria,
of course we remember you!!

so sorry your sx are coming back and surg, won't acknowledge it.

I keep wondering how some of the other long time MIA members are doing, someday I hope we hear from them too.
Jo
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Old 09-23-2006, 12:06 PM #23
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thanks for the reply.....still in parents basement.....ok 32 want a life.....

hugs Vic
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Old 09-25-2006, 01:43 PM #24
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Well, here's my story...the short version:

Injured July,2002: 2 door size boxes and weighing 120 lbs. fell against my back hitting all of it in entirety including my neck. I went to Concentra, then Dr. Weddington for Thoracic/lumbar/cervical strain: PTand acupuncture & went back to "modified" work after a few weeks. R arm began to hurt 1/03, complained to work& Dr without any response, continued getting worse, switched Dr's, Dr. Swartz, MRI 4/03:tendonitis in R shoulder/rotator cuff, bulge in neck. Dr only offers meds & off work May/03. Changed Dr.'s again/Dr. Handleman: osteopathic manipulations &prolo injections,acupuncture & PT. Feeling best since injury until Dr. got a crush on me/had to seek new Dr., wc took 4 mos to authorize, got increasingly worse. Saw Dr. McClure d/x TOS w/ MRI/MRA Nov/04. Cervical epidural Nov/04.Dr. Hines for pain mgmt. Dr. Rosales for cognitive therapy/psych. S/x on R shoulder 1/05 w/Dr. Greenwald. Cervical epidural 3/05. 12/05. Moved to SLC. Dr. Giovanniello/SLC treating Dr, cervical epidur. 1/06 & 3/06. Pool therapy/PT for TOS. Dr. Shulimson for cognitive therapy/psych. Cervical Facet block injections 8/06, authorized for rib resection/scalenectomy 10/4/06.
So a week to go for surgery!!
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Old 09-26-2006, 12:55 AM #25
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Welcome to the communiy!! We'll try to help if we can!!

Victoria
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Old 09-26-2006, 06:41 PM #26
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Default in good shape for what i've been through

i drive 2 hrs to go to my old family doc, because it take too long to describe all of my problems to a new doc. she tells me that it's a miracle that i am in such good shape for what i've been through.

it would also take too long here, but here are the highlights.

3 mva's where the car/truck was totaled, one a rollover where i came out of my seatbelt.

3 workman's comp injuries not counting the one with the gag order.

3 toxic jobs, 2 with gag orders.

lots of falls, and a trick leg that sometimes gives way under me.

2 tos diagnoses, but none substantiated by additional testing.

a lifelong sleepwalking disorder that the sleep doctors are calling "alleged". i have broken bones from this alleged disorder.

a retinal occlusion in one eye and multiple minor peripheral blind spots in both. the retinal occlusion is nearly dead center. you can't imagine how annoying that would be until it happens.

high blood pressure.

total hysterectomy 10 yrs ago.

osteopenia.

gosh i am long winded. i also get depressed occasionally, but most of the time i am pretty happy.

i overwork, but i do enjoy my job.

i use a kinesis ergonomic keyboard. it has helped a lot.

i have been a horse woman most of my life and for financial reasons i had to adopt (sell) out both of my horses. i have visitation. i keep my big truck for that day when i can afford to have them back.

i have a very friendly dog and that's most of my social life.

i don't work and play well with others. i guess my social skills aren't up to getting along with (can't use that word here).

really get a lot of support here on this forum and couldn't imagine not having y'all.
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Old 09-28-2006, 12:02 AM #27
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oh and I am F/32 in sunny Ontario....lol not for long.....snow is soon to come!!!!
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Old 10-02-2006, 02:58 PM #28
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Hey guys

its Kimmie here don't know if you rember me I don't post alott mostly
just watch. any ways Hi Tammera Hope you are feeling well.

I was ina head on closion car accident.
(L) Carpultunnel surgerys x 2
(R) Carpultunnel surgery x3
I have had 2 surgerys on the (R) side scalemenectomy, 1st rib resection "98"
I have had 3 surgerys in my (L) side 1st rib resection, scalenectomy, 1st rib resection Jan. "99" 7 months later. removel of Bone spure, redue
sympathectomy witch was very very painfull I don't recomend it., "2003"

BAck fusion surgery ALIF "2004" digenitive disc. L45-S1
I also had to have a Pota-Cath placed because when they go to draw blood they don't get any. Do's any one else have the same thing.???


Kimmie
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Old 10-05-2006, 09:17 AM #29
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Post flippnout

Hello flippnout , My name is kim I to go to st.louis I see
Dr. Thompson I have been seeing him there sence 1997
I live in Missouri.

where do you live if you dont mind me asking just wondering. How did your surgery and the Sympathectomy go.?

I had the sympathectomy 2003 WOW!! I wont have that again I don't know what you. But I was in so much pain after the surgery. I have had 2 surgerys on my (R) side and 3 surgerys on my (L) side. my left subclavian artery is so butchard up from all the surgerys How ever I like Dr.Thompson I trust him we have been threw alott.

how ever here is my Email address is you wouldlike to write me. khomeswood34@gmail.com

thanks Kimmie
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Old 10-06-2006, 10:39 AM #30
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Hi, I just found this board. Well, actually I found the ressurected old brain talk board and then stumbled onto this one.

I have just had a TOS diagnosis, I had an arm injury doing yoga- watch out for poses where you put all your weight on your wrists!!! and after a few rounds of PT and a nerve conduction test, was diagnosed with TOS first in June, and confirmed just a week ago. I am seeing Dr. Sheldon Jordan in Santa Monica, CA. He does a Botox procedure to relax the muscles that constrict, as well as an ultrasound procedure to do the actual diagnosis....anyone else know of or work with him before?

I had a right scalene nerve block about 1.5 weeks ago...was not forewarned about how much it was going to HURT...yikes. But I am starting to feel better. Just trying to gather as much information as I can to make sure (with the docs help) I get on the proper treatment path.


Glad to have found this place, I am a little confused about the two forums, but I guess everyone is over here now?

Nice to meet you all,
Johanna
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