Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 10-12-2006, 05:49 AM #31
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Quote:
Originally Posted by law76 View Post
That's Right....work Comp Is Bs!!! Now Denying My Meds As My Adjsuter Indicated That My Pain Meds Would Not Be Denied...she's A Lying *****
Wow Laura, I have never seen you so vocal so to speak... However I do agree with you about WC and just how frustrated they can cause one to be. I have been providing my own health care and meds for the last year waiting for them to step up and take responsibility that is due! I can not understand how you get injured on the job they hire a "PLEATHORA" of ATTORNEYSto go to bat against me and my ATTY. I would LUV to be back at work, though it is not going to happen at this point and time!!! I can not really drive at this time and when I do it is around my meds and usually under 15 miles... not like I can jump up in my truck and be griping and slamming a 10 speed around than pull a 200 + pound hose around... as far as working in the office... I have my good days and bad as far as typing and not dropping stuff... can see them firing me for not being able to produce. Also my Dr. has placed me on such limitations so it does not progress to much further before I am able to get fixed what got messed up on the job i the first place! I screwed up, playing it tough instead of going to the ER that day... than again on 4/1 was taken over by a major corp and the accident took place on 4/2... I heard they had a zero tolerance policy on accidents, than dealt with their doctors that were a joke seen one of their PTs and on the second visit he doubled my pain oh heck I can go on but it is not going to change anything taking place also starting to REALLY cramp up! I do not know where I am headed though hope all is well with everyone

Mark-N-Goober
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Old 10-12-2006, 11:19 AM #32
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Default Hi

Hi and hope everyone is having a low-pain day!

Wanted to respond to Johanna's question about Dr. Jordan. I haven't seen him myself, but I remember that several people on the old forum had good things to say about him. They seemed to think he understood TOS and that he was "good with the needle." Sorry you've been diagnosed with TOS, but welcome to the forum. You've found a great group of people with an incredible wealth of info. I know I would have been lost without all the info and support I've gotten from the people here and on the old forum.
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Old 10-12-2006, 06:07 PM #33
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Default Feeling Great!

Hello Everyone,
I'm 4 months out from my second surgery. I had the rib removal and all the scalline muscles. Dr Avery did great work! I have been denied therapy wich has been a set back. I was doing water therapy and that was the best it really works the upper body and strengthens the core. It will be about a 12 month recovery and then I move on. Take care
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Old 10-12-2006, 11:05 PM #34
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Stardust- Thanks for the answer. I was a little worried when I didn't see him on the reccomended doctor's list. He does come highly reccomended by my ortho (and himself...but in a very nice way!), but I have been unable to find much about him elsewhere.

Also, I saw him tuesday and am scheduled to have the Botox injections on my right side next week. I am a little nervous- trying to make sure it is the right thing to do, but at the same time anxious to get on with it.

He does all of his needle work with EMG guidance I believe..which is one of the reasons he is accurate.

Thanks for the welcome : )
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Old 10-12-2006, 11:13 PM #35
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Question David, hoping for more info

Hi David,

I'm set to have my 1st rib removed on my right side due a severe narrowing
(only 6mm & 7mm on the left). I had a neck fusion in 10.2005 it helped a lot with my neck pressure, but as you know with TOS there horrible pain. I'm glad to hear you had surgery with Dr. Avery.....Can your tell me more? Did you have a MRA/MRV test prior? How long were under his care before his suggested surgery? What is your history....

Thanks for your time.

Ann
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Old 10-19-2006, 06:55 PM #36
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Default 2 weeks post op w/ Dr.Avery also

hi there.
2 weeks post-op...Oct 4th.
I'm struggling because of a lot of swelling and still a lot of pain. I was under retractor longer than expected because Dr. Avery said it was really quite a mess in there. oops!! My narrowing numbers are/were 5 mm on right which I had done and 2 mm on left.
I have limited range & control of right arm because of swelling of nerves/ build up of fluid affecting biceps and deltoids. I can move my hand and wrist but that's about it for now. I had full range with my arm day of surgery but overnight the nerves swelled up and I've had a little day to day improvement since. My diaphragm was weak too but I've made huge progress strengthening. I'm very tired and wear out easily but am doing stretching exercises every day. Just going to be slow!!
I had my first out patient PT appt today which went well. Before surgery, I moved to SLC to have support from family and it's been reassuring to have chosen to do the surgery in SF even though I'm doing recovery/pt in SLC. The therapist said the last surgical case she had was 15 years ago.
She and Dr. Avery have talked at length and I feel very confident with her. She seems very on the ball as far as the right protocols for healing from this surgery and nerve desensitivation. The facility is state of the art at the Univ. of Utah...just very few surgeries are actually performed here.
I have been so impressed with Dr. Avery. I met him a year ago and then again in March. I had to see a neurologist/ Dr. Ansel from w/c and get his go ahead before they would authorize surgery. Dr. Avery was very thorough before and after in his care and responds quickly. He obviously cares about his patients...and not just those he does surgery on.
Nidia

Last edited by nidia74; 10-20-2006 at 10:11 AM. Reason: oops! used cm instead of mm
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Old 10-28-2006, 06:46 PM #37
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Smile Hi to some old friends

Hi all,
My name is Valerie and I have just been diagnosed with a Subclavian Compression on the right side: Artierial TOS and such.. I am so glad to see a new site .. miss ya all !

Ciao
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Old 11-01-2006, 04:36 PM #38
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Hi all- glad to have stumbled across this site too - I'm a 25 y.o. male, docs think I have TOS - thankfully, only on the left side. Constant pain, numbness, tingliness, weakness, etc. I do get some, albeit brief, relief from the nerve blocks. I've been trying to think of how this all happened, and can only think that its another 6.5yr old injury (mar 2000) from weight lifting- My shoulders had rotated/drooped EXTREMELY far forward. I tore my labrum (left shoulder), which went undiagnosed for 5.5 years or so. I finally had that taken care of this past march. Lo and behold, 5 wks later, i noticed constant numbness and pain in my arm. Initially I wrote it off to the shoulder rehab/surgical nerve block, but it didn't go away . I also realized that I had some of the same pains 1yr ago, and I just attributed them to my other injury. Saw 2 neurologists, was referred to a pain management doctor (top-notch guy, in my humble opinon ). He thought it was brachio-plexopathy, continued to treat me, while referring me to a thoracic doctor, who said it sounded/looked like TOS, and then HE referred me to another neurosurgeon . My pain mgmt doc told me today that no one was to cut on me until i had a BARE MINIMUM of 2 opinons (exluding his) - that raised my respect for him. Thankfully I'm still able to work, but going to the doc/pt (and never after or before my long work hours) is getting tiresome. I know it could be worse. Sorry to ramble......
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Old 12-19-2006, 03:02 AM #39
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Default Hi to all old and new

Man o man where to start.

01/2003 started having numbness of upper extremities while working overhead
made several dr. visits to finally get a name and DX for it. Only took
18 months.
08/2003 Dx'd bilat. C/T and Bitlat arterial thoracic.
09/20/2003 removed from work for redue of right C/T and birage of Physical
therapy for Tos. amoungst the nightmare of tests emg/ncv's
goes on for along time until 2004
10/12/2004 all treatments and therapies stopped due to complications its has
caused medically suspended from work till further notice finally.
11/08/2004 right 1st rib resection performed with positive results no therapy
given
12/09/2004 left 1st rib resection performed with bad results no therapy given
12/24/2004 unable to take anymore of me hurting wife leaves me.
01/06/2005 still having complications to left side and no ideas from dr why.
02/14/2005 with improper care and lack of if attempted suicide for both
physical and emotional pain.
totall attempts number 4
the pain in the left is still present to this day and has caused me all sorts of grieve. the last attempt on myself was june 30/2006 and left me in the hospital for over 2 weeks one week was spent in ICU. dont remember much of the time..
finally got the help i needed from pshyc dr's. not that i trust dr's anymore thou.
10/10/2006 1 week stay in hospital for a t4 or t5 epideral 750 ml of bupovicaine pumped in my arm. stopped pain for 3 days after it was removed

now waiting on dr for the installation of some type of electronic device that is supposed to interrupt the pain signal from my arm before it goes to the brain
still fighting with w/c and ss lawyers. have not gotten a pay check since sept 20,2004 its sad to be living at home at the age of 34 with parents.

chris
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Old 01-17-2007, 01:56 PM #40
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Hello to all I didnt post much on old forum .TOSER/RSD .99 dx repetative strain.01 rib resection with sypathectomy.05 spinal stim implant.
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