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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

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Old 08-26-2006, 11:15 PM   #1
law76
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Arrow Your TOS history {Also make your own thread on the main TOS section }

SINCE THE OTHER SITE IS DOWN...I GOT HURT AT WORK ABOUT FOUR YEARS AGO..OFF WORK FOR TWO.....ALSO HAVE HERNIATED DISCS IN NECK AND FYBRO...POST-SURGICAL FOR RT SIDE RIB RESECTION.

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Last edited by Jo*mar; 02-13-2016 at 01:17 PM. Reason: update & added link
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Old 08-27-2006, 09:01 PM   #2
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Laura, I am bi-lateral, left side more so than right due to a work related accident and still haviving an up hill battlre with the attorneys...I have several issues going on with my neck though these have been present for more that the last 10 years and do not even come clsoe to the TOS BEAST... MARK-n-GOOBER
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Old 08-28-2006, 08:20 AM   #3
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After an accident I had 2 shoulder surgeries on the right side (capsule shrinking, subscapularis-reconstruction, long-biceps-tenodese,..) and later I developped TOS. I have arterial TOS (arteria subclavia is squeezed, angiography showed this very clearly and every 6 month I have a control to see if the artery is intact) and from the "inside"-scars from the shoulder surgeries the nervs are irritated also.

Therapies: actually osteopathie, alexander and rang dröl
Meds: not constantly only if the pain is too strong, sometimes muscles relaxing meds
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Old 08-29-2006, 12:08 AM   #4
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I have Bilateral Thorasic Outlet.. Post operative Jan 06 for right sided scalenectomy and neuroplasty.. Fibro, Split Sciatic nerve and Failed C5 and C6 fusion and I am currently awaiting autherization from W/C for repair of failed fusion..
((Hugs)) Dawn
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Old 08-29-2006, 06:49 AM   #5
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Hi guys, it's me TamaraShadow!!! Somehow I couldn't get my old name back...

Right now my issues are: post surgery pain to right side, TOS;

considering whether to proceed to surgery on the left before symptoms become very bad as they did on the right; or wait and see;

lung problem (adelectosis) being diagnosed and treated - have to go through private insurance as work comp is ignoring it;

just got 10 or 12 visits of psych counseling - YAY! I need it.

Severe fibromyalgia in whole body.

RSD has retreated a lot, just a little on arms and back of calves occasionally.

Missed you all SOOOOOO much. Still sleeping two or three hours here and there, which really messes up the day time. (I am doing this at 4 AM and need to take my pills for pain as it's sky high.) So bye, bye!


PS Laura, saw you called today, I was sleeping most of afternoon / PM time. Will try to call back soon.
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Old 08-29-2006, 09:58 AM   #6
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Hi everyone It's good to see so many familiar names here.

Since we are doing introductions....

I'm Liz, with no official TOS diagnosis but a doctor who said "probable Left sided TOS". I never went to a specialist to get 'officially' diagnosed because it doesn't really matter anyway (since I could never and would never have surgery anyway). Based on symptoms, the doc who said 'probable TOS' says it is neurogenic TOS. So I'm just gentle with my arm to try not to make it any worse.

I have Fibro, and connective tissue disease, and "possible MS" and a variety of other stuff for which I take a variety of meds.

Nice to be able to see everyone again and reconnect
~Liz


PS to Tamara --- the reason that you couldn't sign-in as TamaraShadow is because these are completely different forums with no affiliation to braintalk or John Lester, so there is no database that remembers anyones usernames from the original BrainTalk.

This forum was set up by a man named DocJohn who runs the website and forums at PsychCentral and he set them up because he was concerned with BT being offline for so long with no updates, so he set up this BT2 for the BT members to be able to get back in touch while the original BT is offline/broken/gone. He named it BrainTalk2 so that people could easily find it.

Some people want him to keep this place open even after the original BT is fixed (there is a poll about that in Forum Feedback along with lots of posts as to peoples reasons for wanting this place to remain open) and if it does remain open after BT is back online, DocJohn said he would then change the name to something different.

You could use the name TamareShadow here, you just have to newly register it the same way you newly registered tshadow.
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Old 08-29-2006, 07:14 PM   #7
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Actually I did try to register Tamarashadow, but it said someone else already took it, and that it didn't register my email...so I had to choose another one. I kind of like my new one, though!
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Old 08-30-2006, 01:30 AM   #8
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Injury 6/2000, continued to work with minimal restrictions.
Dx'd 5/2002
8/2002 Bilateral BP & R Ulnar Nerve Depression
9/2002 Symptoms returned
1/2003 RCTR
8/2003 W/C denies ALL PT, recommended tests, pain management & vascular surgeon consult
8/2005 dx'd with Ovarian CA
W/C continues to deny all ...
But hey,
I'm alive and fighting everyday even though it gets old, old, old.
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Old 08-31-2006, 11:19 PM   #9
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That's Right....work Comp Is Bs!!! Now Denying My Meds As My Adjsuter Indicated That My Pain Meds Would Not Be Denied...she's A Lying *****
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Old 09-01-2006, 12:51 PM   #10
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1999 - Bilateral repetitive strain = fingers, hands, forearms
2001 - R- neck/shoulder strain - due to work
2002/2003 - another neck/shoulder strain R- {slight tear??} - due to work
Barely recovered from that and {MCO} Dr. returned me to full work {again??}
2003 - all of the above returned and increased in symptoms over time

Eventually spred to include some short term ulnar nerve pain and L shoulder pain, with some hypersensitivity remaining in elbows and forearms for over a year.
03/04 started seeing links and info about TOS and then found BT1.

Most of my symptoms are mild now, as long as I pay attention to overuse and posture issues.
I think I do have a chronic C/T spine strain along with TOS & RSI

If I lift or carry something heavy with arms out I get a very weird pulling pain right in the T spine/C spine junction. Even reaching out over the couch to slide the window shut is a pain.

Last edited by Jo*mar; 10-06-2006 at 06:49 PM. Reason: added and clarified
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