Hi I'm an Aussie 35 year old guy with diagnosed TOS. 1st and 2nd ribs are fused so in a couple of weeks the vascular surgeon is going to cut them out. The subclavian vein gets completely occluded, I don't even need to raise my arm to lose pulse - just pull back the left shoulder and it's enough lol. Having said that though it seems tolerable apart from waking up every morning with a numb arm etc. There is a pulsating mass just above my collarbone where the docs say it's being pushed out due to the bone/fused formation.

After reading the horror stories in here it seems like most things get worse after surgery from scar tissue and general weakness etc, hence it's got me wondering if having the op at all is such a good idea if things are going to be like that. Would things get worse if I was to just stay like now? I mean seriously this isn't all that bad compared to what I'm hearing can occur afterwards, can anyone be kind enough to grant some helpful advice because I'm feeling quite apprehensive about the whole thing.

Btw I just got out of hospital a few months back from thyroid cancer surgery, basically they removed the whole thing but given that the thyroid resides just below the skin of the neck it was rather non-invasive and tbh it's nothing compared to the TOS op. Apart from that I'm strong and healthy, no problems at all.