Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-02-2013, 07:58 AM #1
brmr19 brmr19 is offline
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Default Good news

Seen my surgeon yesterday. The left (two surgeries) side has good blood flow, but still some nerve issues. The right side has better blood flow, but certain movements still compress the flow. Some nerve issues as well. Anyway, I have had slow but continued improvements. I will continue with my PT and see how it goes, prior to having any further surgery. I will see doctor again in a few months to check progress. I have been able to do more around the house and I am learning to make the necessary modifications I need to ease any symptoms. Life has got much better since this TOS journey began 2 years ago. There is hope. I still can not do all the things that I use to do, but I am grateful for what I have now. I guess the silver lining to my journey is that I have spent the last two years building a better relationship with my teenage children, which I truly cherish. Being a police officer prior to TOS, took a lot of my family time away, so there are positives that to getting this awful syndrome.
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Old 03-05-2013, 08:32 PM #2
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Progress is good. Even if we don't ever return to 100%. Sometimes my wife has to remind me how bad things used to be.

Always wishing you the best of luck and continued improvement.
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Old 03-06-2013, 08:33 AM #3
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My wife reminds me as well. She watches me like a hawk when she is home, because she knows I tend to overdo stuff, and she tells me when to stop.
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Old 03-10-2013, 10:33 PM #4
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Default Question to Brmr19

Hi I am new to the thread and did a search for the Dr I am seeing and I notice that Brmr19 had Dr Daniel Clair from Cleveland Clinic do your TOS surgery. I am scheduled to have surgery on March 20th with him and there is not very much information regarding him. In short my history is I was developed a blood clot in my right arm in July of last year, I was put on all the necessary blood thinners and such and while I was completely therapeutic on my coumadin developed another blood clot but this time in my left arm in August. Because I broke through on the coumadin the doctors (which like everyone has seen my share of vascular surgeons) will only allow me to take Lovenox shots (2x daily and have been since early August ) My symptoms are completely related to the blood clots at this time. I do not nor have not seemed to have any neuro issues with either arm. The only time I have pain is when I am not on time with my shots. Dr Clair took one look at all my test results (have had them all) and said surgery was a MUST for both right and left side. I have read horrible stories about this surgery and must say I am very scared. I am not a young thing (late 40's) but I am very active. Run and exercise pretty much daily and worried how all of this will affect my quality of life. Any information/insight you could pass on regarding your surgery and or Dr. Clair would be so appreciated!! Also the Dr. Office said that I would only spend the night of surgery in the hospital and go home the next day. Is this actually possible? I live 6 hours a way from the hospital and concerned about driving home the next day as well as being that far from there if anything were to happen.
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