Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-25-2013, 01:47 PM #11
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After reading several threads I am seeing something that I did not connect before. I have also had chronic tightness/pain discomfort around my right scapula. That and since all this happened I have also had discomfort in the lateral pec region. Man, I really screwed something up!
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Old 03-25-2013, 02:03 PM #12
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Originally Posted by Jo*mar View Post
well, as long as the head t surg is in the room during the op all should be good.
He will take over if needed I hope..
One word of caution, in doing my research it became apparent to me that I needed a Dr who performed this surgery a lot and often. This is a major surgery.

Also, the issue about too many colaterals is the same reason I was not operated, when my injury was first diagnosed. Current Dr said this was not an issue to correct the occuled vein.

Best of luck

Regis
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Old 03-25-2013, 03:24 PM #13
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Also, the issue about too many colaterals is the same reason I was not operated, when my injury was first diagnosed. Current Dr said this was not an issue to correct the occuled vein.

Best of luck

Regis
Thanks. Good to know. Problem now is trying to find a doctor here that agrees.
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Old 03-25-2013, 04:21 PM #14
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After reading several threads I am seeing something that I did not connect before. I have also had chronic tightness/pain discomfort around my right scapula. That and since all this happened I have also had discomfort in the lateral pec region. Man, I really screwed something up!
What you describe seem to be common neurogenic symptoms.

In my case I was able to isolate the lateral pec pain to the pec minor and subclavius muscles. When the rib is resected so is the subclavius muscle. After my rib resection surgery and physical therapy, I no longer have the lateral pec or scapular pain which you describe.

You may need to find a therapist which can properly mobilize your remaining ribs to get rid of the scapular pain as rib dysfunction is possibly the cause.
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Old 03-25-2013, 04:22 PM #15
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Thanks. Good to know. Problem now is trying to find a doctor here that agrees.
What part of the country are you in, there are many people that can assist you with finding an experienced surgeon if you want?

Regis
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Old 03-25-2013, 04:26 PM #16
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One word of caution, in doing my research it became apparent to me that I needed a Dr who performed this surgery a lot and often. This is a major surgery.
+1

If possible, consult several surgeons before choosing and going through with surgery.
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Old 03-25-2013, 04:35 PM #17
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What part of the country are you in, there are many people that can assist you with finding an experienced surgeon if you want?

Regis
Phoenix, AZ. I'm just making call after call. Trying to find surgeons that do this. Problem is each one wants all the info, evals, money, etc. I just want someone that will fix this properly. It took 7 weeks just to convince my doc that this is what I had. I'll be changing PCP after this.

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Old 03-25-2013, 04:36 PM #18
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You may need to find a therapist which can properly mobilize your remaining ribs to get rid of the scapular pain as rib dysfunction is possibly the cause.
Luckily I'm an Occupational Therapist. Guess that's an upside. Lots of contacts and resources for rehab.
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Old 03-25-2013, 04:53 PM #19
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Phoenix, AZ. I'm just making call after call. Trying to find surgeons that do this. Problem is each one wants all the info, evals, money, etc. I just want someone that will fix this properly. It took 7 weeks just to convince my doc that this is what I had. I'll be changing PCP after this.
Another forum member in Phoenix is scheduled for surgery with a Dr. Koopot (looks like it is today actually). I am fond of the St. Joseph's health system so I would try and get a consult with him if I were you.

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Thanks for the help! I was actually referred over to Dr. Koopot at St. Joes and have surgery this Monday to remove first rib, scalene muscles, and have pec minor released. He feels mine is primarily being caused by the lower thoracic (pec minor), but wants to do the top as well to cover our bases.

Very knowledgeable Doctor and is part of the heart and lung division.
http://www.stjosephs-phx.org/Medical..._Center/199153
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Old 03-25-2013, 05:21 PM #20
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Another forum member in Phoenix is scheduled for surgery with a Dr. Koopot (looks like it is today actually). I am fond of the St. Joseph's health system so I would try and get a consult with him if I were you.



http://www.stjosephs-phx.org/Medical..._Center/199153
Awesome!! Thanks!!
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