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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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03-28-2013, 11:20 AM | #1 | ||
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I had my left top rib removed 5 weeks ago. My symptoms that got me to that point are still happening. I went back to my surgeon and he ordered a CT scan and that showed that my vein has damage. Tomorrow I go back for a venogram and they are going to dilate the vein. My dr says that if that doesn't work he doesn't know what to do. Really? I asked if a stent could then be put in and he said he would look into it. I sure this whole surgery wasn't a waste of time and I still have to put up with swelling and numbness! At least he did finally approve me for PT which I hope helps! AAAAAHHHHHHRRRRGGGG! There done venting now
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03-28-2013, 01:02 PM | #2 | |||
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It may be time to consult another surgeon for a second opinion and more expertise. Where are you located?
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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03-28-2013, 01:25 PM | #3 | ||
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03-28-2013, 04:16 PM | #4 | |||
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As I understand, they don't recommend putting in a stent for TOS patients. Maybe in your case they would but I was told never, ever.
I do hope you feel better really soon! 5 weeks isn't that far out of surgery and you still have many months of improvements to be had as swelling goes down. Hopefully that damaged vein is successfully dilated. |
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03-30-2013, 08:28 AM | #5 | ||
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I went into the cath lab yesterday and they did an angioplasty on the vein that was compressed. They gave me a picture that showed before and after they did the balloon and it showed wonderful flow now! I go back in 8 weeks for another CT scan to make sure that this indeed to solve the flow problem. The doctor told me that a stent in this area would be useless because of where it bends so the next step is to put in a new section of vein to replace the damaged area. I hope this works because I really don't want to do the splicing option!
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03-31-2013, 10:25 AM | #6 | ||
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It has been two days since my angioplasty and my arm feels fantastic!! What a joy this is!! I start PT on Tues and I am looking forward to it. Can't wait until my energy level is back so I can start walking and get the weight off that I have gained since surgery from "taking it easy"!
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04-01-2013, 12:46 AM | #7 | |||
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Good news!
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Marc . ACDF C5-C6-C7 2/28/11 . . . . |
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04-04-2013, 04:57 PM | #8 | ||
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Well the good feeling didn't last. My symptoms of numbness, tingling, swelling returned on the third day. I am waiting for a call from my doctor to see what our next move is. Really hard to stay positive at this point....
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04-07-2013, 08:15 PM | #9 | ||
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It sounds like the nTOS symptoms may have returned but did the vTOS symptoms return as well?
did the flow problem come back? |
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04-07-2013, 11:02 PM | #10 | ||
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get better T!
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