My surgeon called this morning (2 days before surgery) and stated that decompression surgery will most likely NOT help with my VTOS as I have compression and scar tissue of the vein (no DVT). In addition, she stated that during surgery it is possible that there could be damage to the collateral veins that have formed, leading to even worse circulation!! She further stated that any repairs to the vein would no be long lived as the venous system is "low pressure" (vs. high pressure arteries) and repairs tend to fail. Why do I feel like I know more about VTOS than these "professionals". I could have told them this 6 weeks ago!! Anyway, I have talked to a few of the leading guys in the country, and have scheduled an appt with a specialist who is more familiar with this.

Can anyone here tell me how their VTOS was repaired? Specifically those that needed vein repair or did not present with a clot. Thanks all!!