So...after Botox and after 6 mo *good* Physical therapy....

my legs are wanting to stretch like mad. the nerves in my legs seem to want to "kick" out my legs.

when I stretched my legs in bed last night (had too they were driving me crazy to be stretched)...I could feel the nerves in my thorcic outlet stretching out.

i am not sure if my legs got tight from loaning nerve/facia slack to my thoracic outlet -or- if my thoracic outlet simply needs an end of the nerve string to be pulled. but it is funky as all he hockey stick.

markie

Could it be something like restless legs?

I get that at times. Usually when I have not been active enough, like during the wet/rainy winter.
Also could be the whole myofascial connection, if we are stiff & tight due to adhesions/sticky tissues it can tend to spread thru the fascia as it is all intertwined.

To be sure, it is NOT unrelated.

The first time my legs kicked out was during physical therapy. The next time was the 2 week point after Botox (which is exactly when Botox is supposed to start working). This is not a seperate issue and because I could feel my thoracic region and nerves stretching when i stretched my legs, I know it is all working together.

It is kinda super cool that it may mean I am getting *better*.

woof!

It may be some myofacia stuff going on. It's definitely not pulling the nerve. The nerve that goes through the thoracic outlet goes down your arm- not into your leg. So it's either a coincidence or the myofacia but in order for it to be that you'd need to be very, very stiff. Myofacia doesn't really "lend" slack, it balls up and causes stiffness and pain. I hope you are getting better though!

You should google

"Slump test" that shoukd tell you something

Ive had tingling in my lumbar that set off my tos area...i think its peripheral neuropathy. If one area is scarred everything else starts firing off

I've had full body flares and been told it is peripheral neuropathy. My worst flare was actually triggered by a virus and coinciding bacterial infection.

I have mild lumbar foraminal stenosis, which causes my leg tension/pain when it flares up.

how did you find out you had a virus? i have always been curious (worried) about that..

my lumbar xrays are normal but i know i had an irritated disc in my back bc arching it made it feel better. in a few years im sure ill need an mri

the different types of neuropathy confuse me. i guess because i have dysautonomia i have autonomic neuropathy but the PN ive experienced has been way worse i think. whereas i think most people with ehlers danlos syndrome complain about the autonomic...

i need to read about small fiber neuropathy, worried i have that. but if i cant do nerve glides easily then that doesnt make sense to me either!!

nerves are so confusing [/rant]

Thermometer/fever

Thats nice and straight forward

I read about Lyme disease and this other bacterial virus,cant remember the name, It was mysterious...like following a cult And these people were taking antibiotics for an indefinite period of time

nospam

Curious to know what type of doctor told you that you have peripheral neuropathy and what helps in that situation.

chloecasey