Hmm, no. Link?

And how much is it anyway? His page at http://tosinfo.com/ doesn't say or give a link or other contact info to make appts afaict. Maybe I missed it...

Here's the link that proves my point
http://www.youtube.com/watch?v=0oVqqD0YFq4


How much is it? it's done at UCLA radiology not private practice so it is whatever your insurance company's contracted rate is with them. search UCLA dr. collins and you'll see his page and appointment line. it may take around 1-2months to make the appointment.

Not every vascular surgeon who claims to treat TOS is knowledgeable enough to treat TOS. I had all the MRIs and ultra sounds as you did and nothing showed up. TOS is very hard to diagnosis. The MR Neurograph was the only test that showed my compressions. Doctors usually prefer their own test. There are several types of TOS and not all involve arteries and veins in big degrees. I think we all end up at the doctors who are more specialized with our conditions. My compressions of the artery were not see or found until I was in the operating room. We all are just relaying our personal experiences and they are not all the same.

Much about TOS is dependent on plain old luck, IMO
Some tests will show things , some drs will know things and lucking out by finding good help early on is usually the best thing.

Hi guys,

I am a 28 yr old female who was diagnosed with Long Thoracic Nerve Palsy and Brachial Plexitis, if that means something to you.
I had a terrible accident on a boat and shattered my ankle but didn't notice any trauma to my shoulder. it was only after a month or two of being on crutches I noticed scapular winging and an inability to lift right shoulder over my head.
I assumed it was tight muscles due to crutches and ignored until a Physiotherapist urged me to see a Neurologist. The Neuro said that nothing could be done about my nerve injuries and that it may heal, and may not.

I have very little quality of life, have severe chronic pain in my neck and haven't been able to work in over a year. I have seen a chiropractor, and massage therapists and all the treatments help only very temporarily and are very expensive. I have run out of money and am running out of will. I just saw a rehab physician who told me it could take 3-5 years to get better. How is one supposed to support themselves and live with chronic pain on a daily basis. Even sleep is very uncomfortable I am sorry to whine on here but feel VERY lost and alone.
Any ideas or suggestions would be greatly appreciated. For anyone else suffering with similar problems, I have switched to an electronic toothbrush and many kitchen gadgets such as the slap chop and a blender to help with cooking as that was a serious contributor to my pain. I have not noticed any improvement in 1 year. I am considering acupuncture, but again, is costly and may not help .

Hope to hear from someone, anyone!

Thank you for listening

He. Doesn't Believe in surgery Bc he's a DC!

Be careful with acupuncture. You might try acupressure. The acupuncture irritated the nerve. I have damage to the long thoracic nerve as well my NeuroSurgeon says it takes a long time to heal. He did prescribe some compound pain medications. They help some. I feel your pain. I can't use my left arm much. I have chronic pain. Butrans patch has helped with pain. Also taking three 200mg twice a day helps the muscles. It is a natural relaxant.
Hope this helps. Happy to talk anytime.

Are you able to apply for Social Security Disability?

Did you ever check him out?