I'm seeing a DO--one that I had to find that was highly rated. I travel over an hour to see her, and she doesn't seem to want to address TOS at all because she thinks my hands should be blue and there should be pain all the time, which isn't the case for me.
I'm new in my area and the closest doctor of any kind is 45 minutes from me.
I found the list of DRs & PTs in NY, so I guess I'll have to go to one of those to get a diagnosis.

I never heard of a MRNeurograph. Can my DO prescribe this? I would go to King of Prussia if it would help me. Thanks

Many drs say or think they know about TOS, but they only have a very limited or mistaken idea of it.

See or drs list sticky thread and our useful sticky thread, it will give you a major crash course on TOS.

You don't ha e arterys involved if you arm doesn't turn blue. A vascular surgeon wouldn't help. The MRNeurograph would help diagnosis exactly which TOS you have. You probably have nerves involved and as long as you don't raise the arm you are not irritating it. Doesn't mean you don't have TOS. Sounds very possible. Google MR Neugraphy. I don't think you need another doctor to order it. They can probably just work it out. Hope this helps.

My arm has never been blue or white or experienced any other discoloration, but Dr. Collins' MRI/MRA/MRV showed compression of my subclavian artery. An ultrasound that I mentioned earlier shows it as well. A vascular surgeon will help you. I hope that you listen to the good advice given on these threads and weed out the poor and uninformed advice.

Not every vascular surgeon who claims to treat TOS is knowledgeable enough to treat TOS. I had all the MRIs and ultra sounds as you did and nothing showed up. TOS is very hard to diagnosis. The MR Neurograph was the only test that showed my compressions. Doctors usually prefer their own test. There are several types of TOS and not all involve arteries and veins in big degrees. I think we all end up at the doctors who are more specialized with our conditions. My compressions of the artery were not see or found until I was in the operating room. We all are just relaying our personal experiences and they are not all the same.

Much about TOS is dependent on plain old luck, IMO
Some tests will show things , some drs will know things and lucking out by finding good help early on is usually the best thing.