Originally Posted by nospam

I'm not you...but if I were you, I would travel to see Dr. Dean Donahue in Boston. You can call ahead to make arrangements for exam and tests since you are travelling from a distance.

Many have tried and failed to find a competent TOS doc in NY.

Originally Posted by nospam

I'm not you...but if I were you, I would travel to see Dr. Dean Donahue in Boston. You can call ahead to make arrangements for exam and tests since you are travelling from a distance.

Many have tried and failed to find a competent TOS doc in NY.

Originally Posted by cheryl1593

Whew, I got through most of the post. This is all I have to say. Sinus problems get better with a GOOD probiotic. Sinus problems are related to how much bacteria is in your gut....but give it time. It takes 4 weeks to cure this.

Then you have another problem. To me it sounds like RSD or sympathetic maintained pain syndrome. You can look that up.

I am a nurse with tos so I have been round the block couple of times.....I have sympathetic maintained pain syndrome which made me feel like I was just crazy...doctors treated me bad too....they just are ignorant and do not know about pain syndromes,,,...anyway,hope this helps...good luck

Originally Posted by cheryl1593

Whew, I got through most of the post. This is all I have to say. Sinus problems get better with a GOOD probiotic. Sinus problems are related to how much bacteria is in your gut....but give it time. It takes 4 weeks to cure this.

Then you have another problem. To me it sounds like RSD or sympathetic maintained pain syndrome. You can look that up.

I am a nurse with tos so I have been round the block couple of times.....I have sympathetic maintained pain syndrome which made me feel like I was just crazy...doctors treated me bad too....they just are ignorant and do not know about pain syndromes,,,...anyway,hope this helps...good luck

Originally Posted by marlalemons

Hi there. I didn't read your story thoroughly, but what I could already see is that your case is complex. I strongly suggest going to Cleveland Clinic. I had very complex presentation of symptoms that nobody could really figure out in Montana. I got answers and treatment at Cleveland Clinic (the main one in Cleveland) and I have been very impressed with their excellent care. You need doctors that have seen a lot of weird, complex stuff. They have seen it all, and they coordinate your care with all of the necessary speciality depts. Good Luck!