Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 05-12-2013, 11:14 PM #1
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Live in Rural Area, Can't Find Anyone(Professional) Who Believes Me (Northeast PA)
I'm not you...but if I were you, I would travel to see Dr. Dean Donahue in Boston. You can call ahead to make arrangements for exam and tests since you are travelling from a distance.

Many have tried and failed to find a competent TOS doc in NY.
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Old 05-13-2013, 12:13 PM #2
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Default TOS consortium List/PT List

http://surgerydept.wustl.edu/TOS_Consortium.aspx

http://www.instituteofphysicalart.com/ipa/referral/list


Check out these lists to see who is closest to you. The PT list isnt TOS specific but folks have found them to be more knowledgable than others about it. I have also heard that the lists are not updated that often, but once you find someone you can google them to see what they specialize in.

good Luck finding help.
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Old 05-15-2013, 11:42 PM #3
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Originally Posted by jkl626 View Post
surgerydept.wustl[dot]edu/TOS_Consortium[dot]aspx

instituteofphysicalart[/url][dot]com/ipa/referral/list


Check out these lists to see who is closest to you. The PT list isnt TOS specific but folks have found them to be more knowledgable than others about it. I have also heard that the lists are not updated that often, but once you find someone you can google them to see what they specialize in.

good Luck finding help.

Thanks for the links. I need help in finding what kind of an MD will diagnosis me. I've been to a PT who feels I have TOS, but the regimine of exercises he put me on made my condition worse.
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Old 05-27-2013, 10:35 PM #4
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Thanks for the links. I need help in finding what kind of an MD will diagnosis me. I've been to a PT who feels I have TOS, but the regimine of exercises he put me on made my condition worse.
I was told by Dr. Dean Donahue that I probably would not have PT at all just one exercise each day for 365 days. NOW, I don't know if it has to do with me having tos condition for over 40 yrs. you would have to check with him on that. However, he did say (paraphrasing), he's not a big fan of PT after surgery. I will be operated on June 18th by him at MGH, Massachusetts General Hospital in Boston, Ma. He is also one of the docs who just wrote the first text book on tos along with a few others who are also top of their profession.

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Old 05-13-2013, 12:19 PM #5
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If you are pretty sure that the laptop/couch combo started this, then I don't think you really need to find a surgeon yet.

I don't know if the PT you went to was highly skilled or especially talented.

Did they check your top rib/rib mobilization?
Trigger points manual release?
overall posture assessment?
do you have a better computer set up now? so not to make sx worse?

You might focus on seeking out expert body workers, advanced PT or even a chiro that has many skills/talents and does soft tissue work. Mine did and he was the most help for my version of TOS (chronic multiple RSI type)

There are many things you can do at home to repair the posture and soft tissue restrictions. Youtube is full of so many therapy types, posture assessments, you can get an idea of what might be best or who to look for.

Since you are so from a large town , I would suggest exploring Sharon Butler's website and possible getting her TOS plan (does have a 100% guarantee) www.selfcare4rsi.com
she suggests very gentle stretching to loosen the sticky tissues..
her articles are very good -
http://www.selfcare4rsi.com/rsi-articles.html
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Old 05-13-2013, 08:54 PM #6
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I forgot to mention that I have chronic sinusitis from allergic rhinitis with post-nasal drip. I use NeilMed Sinus Rinse to deal with the post-nasal drip.

http://www.neilmed.com/usa/products.php?=#isotonic
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Old 05-15-2013, 11:48 PM #7
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Originally Posted by Jo*mar View Post
If you are pretty sure that the laptop/couch combo started this, then I don't think you really need to find a surgeon yet.

I don't know if the PT you went to was highly skilled or especially talented.

Did they check your top rib/rib mobilization?
Trigger points manual release?
overall posture assessment?
do you have a better computer set up now? so not to make sx worse?

You might focus on seeking out expert body workers, advanced PT or even a chiro that has many skills/talents and does soft tissue work. Mine did and he was the most help for my version of TOS (chronic multiple RSI type)

There are many things you can do at home to repair the posture and soft tissue restrictions. Youtube is full of so many therapy types, posture assessments, you can get an idea of what might be best or who to look for.

Since you are so from a large town , I would suggest exploring Sharon Butler's website and possible getting her TOS plan (does have a 100% guarantee) selfcare4rsi
she suggests very gentle stretching to loosen the sticky tissues..
her articles are very good -
selfcare4rsicom/rsi-articleshtml

Thanks for the links. They seem to be more about living with pain. I want to get rid of it. I've read that since I've been in pain for only 7 months, there's a good chance that good PT might fix this.

Unfortunately, I'm not pretty sure about anything, even how I got to be in pain. I researched TOS and how I've lived my live over the past year would be conducive to creating an environment for TOS to take hold.

The PT wasn't horrible, but wasn't the best either. He did some clinical testing in-office and said he thought I have TOS. But he's not a TOS specialist. And there aren't any TOS specialists near me. I'll have to travel to Scranton, or Wilkes-Barre, PA, or maybe Bingamton, NY.

I just don't know how to determine who to see first, a TOS PT or a vascular surgeon? I keep reading about vascular surgeons.
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Old 05-16-2013, 03:01 PM #8
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Thanks for the links. They seem to be more about living with pain. I want to get rid of it. I've read that since I've been in pain for only 7 months, there's a good chance that good PT might fix this.

Unfortunately, I'm not pretty sure about anything, even how I got to be in pain. I researched TOS and how I've lived my live over the past year would be conducive to creating an environment for TOS to take hold.

The PT wasn't horrible, but wasn't the best either. He did some clinical testing in-office and said he thought I have TOS. But he's not a TOS specialist. And there aren't any TOS specialists near me. I'll have to travel to Scranton, or Wilkes-Barre, PA, or maybe Bingamton, NY.

I just don't know how to determine who to see first, a TOS PT or a vascular surgeon? I keep reading about vascular surgeons.
The top list (TOS consortium) has vascular surgeons and other md's . they can all diagnose . You will probably have to travel unfortunatly.
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Old 05-15-2013, 11:36 PM #9
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Originally Posted by nospam View Post
I'm not you...but if I were you, I would travel to see Dr. Dean Donahue in Boston. You can call ahead to make arrangements for exam and tests since you are travelling from a distance.

Many have tried and failed to find a competent TOS doc in NY.
Thanks for the name. I'm receiving recommendations for doctors all over the U.S., just not sure what to do, who to pick. Then I would need PT, I'm sure.
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Old 05-15-2013, 11:43 PM #10
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I'm not you...but if I were you, I would travel to see Dr. Dean Donahue in Boston. You can call ahead to make arrangements for exam and tests since you are travelling from a distance.

Many have tried and failed to find a competent TOS doc in NY.
What can you tell me about Dr. Donahue?
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