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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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05-14-2013, 09:25 PM | #1 | |||
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Ok....I am to the point where I am going to be booking surgery with Dr. Donahue in Boston.
What are pre-surgery questions to ask? I want to know how I can keep the rib. What side he wants to do. Summary: I have had TOS for 9 years (only last year with diagnosis). So, for the most part, 8 years of doing nothing for it but avoiding computer and, year by year, more and more activities being avoided. I had to change my career as well (don't really like what I am doing now). I did rib mobilization and myofacial release physical therapy for 6 months and then was told that we hit a wall. I did see minor improvement shortly after ending that therapy. Botox with Dr. D did not do anything. Also am currently back in therapy seeing if the Botox helps advance us. Physical therapist can't really tell; either can I. I am sick of going to therapy. I have been in therapy for a year (6 months of stuff that only made me worse, and then the 6 months of the stuff that made me slightly better). I am not in pain. But, if I were to do activities (swim, use a computer for a job, or long at home, type up a story cause I like to write, or even just try on different jeans at a store!) then I get numb pinkies and if I keep it up, then I get the pain/pressure in my arms. I have never had neck/shoulder pain. In other words, I am at a point in my life where I am fine as long as I don't do anything. Dr. Donahue has never made anyone worse from surgery. There is real hope with him. I want to try it. I have wasted 9 years of my life (mostly in my 20s decade) and I want the chance at living back. Or, at least being normal. If he doesn't help me much, that is OK. I want to try. Thank You. Mark |
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