Bless your heart....gosh these new doctors these days sure do give people the run around alot. It has happened to me too.

I learned finally that I have to go to TOS specialist for anything because if I go anywhere else I get the run around....I finally learned that I do not have normal anatomy and other doctors just see me as an alien.

Maybe you can go see a new TOS specialist who has new eyes on the problem......sorry you are having problems.

I did know some TOS patients did need oxygen to be able to sleep at night.....as the nerve healed. I just can't believe that your surgeon did not help you deal with a complication. I am a nurse and it is the surgeons JOB to help you if you have any complications! Gosh that just makes me so mad as these surgeons make tons of money off sick people....the least they could do is help someone who has a complication.

Bless your heart....gosh these new doctors these days sure do give people the run around alot. It has happened to me too.

I learned finally that I have to go to TOS specialist for anything because if I go anywhere else I get the run around....I finally learned that I do not have normal anatomy and other doctors just see me as an alien.

Maybe you can go see a new TOS specialist who has new eyes on the problem......sorry you are having problems.

I did know some TOS patients did need oxygen to be able to sleep at night.....as the nerve healed. I just can't believe that your surgeon did not help you deal with a complication. I am a nurse and it is the surgeons JOB to help you if you have any complications! Gosh that just makes me so mad as these surgeons make tons of money off sick people....the least they could do is help someone who has a complication.[/QUOTE]

Had to write again! sorry if I repeat here I am just mad.....
It just makes me so mad at these doctors for not helping people who they operated on! OMG. I had my surgeries 10 years ago and I knew that some people had breathing problems, that it is one of the complications to the surgery. I also knew that some people needed oxygen therapy so they could sleep well if they did have this complication. I just don't understand why you have to suffer like this. I am just really trying to figure out why these doctors are not helping you poor TOS patients. If you had oxygen at night you would be able to sleep better because you could feel like you can BREATH!! This is just not right!

Also you can get pneumonia and other problems from not breathing good. I am a nurse and I do know a little about this....oh and I am also a TOS patient too. I had cervical ribs and they had to come out so I was not suffering. You should not have to suffer either!

If you had oxygen to help you then you would not feel like you are getting oxygen starved. My gosh how have you been able to not go crazy....with all the TOA stuff and then not be able to breath good.....you can PM me and I will tell you what I really think! UNBELIEVABLE!

Pattymary, who was your surgeon?

"Maybe you can go see a new TOS specialist who has new eyes on the problem......sorry you are having problems."

I have been to two locals, Yale, Columbia, Mass Gen, and NYU. Enough specialists. They have cost me thousands of dollars, days and days from my life and my kids' lives, and in the end, even the one at NYU who was the only one who spent the time to actually, really, talk with us (hubby always comes along) provided no help as I am non-surgical (vascular TOS caused by scar tissue, bigger risk to operate than leave it). No more specialists. Every time, it opens a little bit of hope, and then it just gets smashed to nothingness. Every other specialist-cardio, pulmonary, neurologist, physio, you name it I've been there, just pushes it off on some other doctor. Round and round I've gone. All it got me was a big case of dizzy and a bigger case of bad attitude.

May every last one of them be treated the same way they treat us by every single person they ever encounter for the rest of their lives. Blessing or curse, it's up to them, and serve them right!