Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 06-03-2013, 10:44 AM #1
winic1 winic1 is offline
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Join Date: Feb 2011
Posts: 295
10 yr Member
winic1 winic1 is offline
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Join Date: Feb 2011
Posts: 295
10 yr Member
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"Maybe you can go see a new TOS specialist who has new eyes on the problem......sorry you are having problems."

I have been to two locals, Yale, Columbia, Mass Gen, and NYU. Enough specialists. They have cost me thousands of dollars, days and days from my life and my kids' lives, and in the end, even the one at NYU who was the only one who spent the time to actually, really, talk with us (hubby always comes along) provided no help as I am non-surgical (vascular TOS caused by scar tissue, bigger risk to operate than leave it). No more specialists. Every time, it opens a little bit of hope, and then it just gets smashed to nothingness. Every other specialist-cardio, pulmonary, neurologist, physio, you name it I've been there, just pushes it off on some other doctor. Round and round I've gone. All it got me was a big case of dizzy and a bigger case of bad attitude.

May every last one of them be treated the same way they treat us by every single person they ever encounter for the rest of their lives. Blessing or curse, it's up to them, and serve them right!
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