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Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie. |
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05-24-2013, 06:36 PM | #1 | ||
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By ripping and tearing I mean if I walk or run I can literally feel the nerves getting caught in something and then it feels like they are ripping through my muscles or skin and then shooting down my arm... Like it gets caught somewhere in my chest area and then it will get caught and then tearring like a ripping feeling.
When I take a deep breath in I can push below my clavicle on some sort of what feels to be like a muscle mass and then it pops superior above clavicle - when this happens though there is also always tearing ripping in my arm -- all docs say there is nothing abnormal in my MRIS and CT scans as far as muscles I can also feel in between the deltopectoral groove on that side and actaully feel the nerves unlike my non affected side I just feel muscle (like the pectoral muscle) - however on my last shoulder surgery the doctor checked for a pec or deltoid tear and it was negative. The TOS doctor is Dr. Annest in Colorado - I feel very confident in him as a surgeon just my symptoms are so unique that its ahrd to say if this is the surgery I need |
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05-25-2013, 01:58 AM | #2 | ||
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__________________
Parbie -6/20/14 Seroma Drainage Right Side -7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis -8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy |
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05-25-2013, 09:39 AM | #3 | ||
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Parbie: What do you mean as far as your thread and if being unsure - was annest unsure about your diagnosis of having TOS... I have always found the doctors in Colorado (shoulder and TOS) the upmost polite, time giving, and compassionate out of all doctors I have seen - and I have seen many due to my shoulder, elbow and now possible TOS
Also what study are your talking about that Sanders and Annest are working on - I could not find it in your thread - could you please send me this link? --- Also has anyone had these sx's??? The tearing of nerves when walking etc almost makes me thing I do not have TOS and need to get my other side of my clavicle stablaized because maybe it is rubbing against the nerves due to it movign to far posterior at the distal side since the SC joint is loose moving anteriorly - My shoulder doc cant gaurantee me this stabalization procedure will help but he thinks it has a chance as SC injuries cause a varying type of symptoms. |
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05-26-2013, 06:19 AM | #4 | ||
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As far as the study, it is something they are working on, not published yet but it seems right now their focus is more on research and less on patient care. I mentioned my thread because it shows I went through a ton of doctors before I found out about TOS and then a ton of surgeons before I CHOSE one and flew to Denver from NYC just to have mine done by Annest and Sanders due to their experience and especially because Annest was very caring when he spoke to me and sounded genuine. BUT....right after my surgery, he left the state and I was forced to follow up with Sanders who did not perform the op, he is retired. Annest also did not do what he said he would do during my surgery and barely addressed that. Then during my follow up, I flew back to see him because I was not doing well at all, sx were worse and got new sx..he did not address this, he forgot he didn't remove my c-rib, he had one concern only, which was if my long thoracic nerve that he injured during my surgery was healed and he said it is was and went on and on about how ecstatic he was then he said he can't do anything more to help me and I need to back to pain mgmt. By the way, my long thoracic nerve has not healed, he was wrong about that, he rushed my entire appt. I do love his assistant Kathy though, she has always been nothing but super nice but she is not the Dr you are letting cut into you and the Dr you need to follow up with and the Dr who should remember you especially if he botched your surgery....
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Parbie -6/20/14 Seroma Drainage Right Side -7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis -8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy Last edited by parbie; 05-26-2013 at 06:21 AM. Reason: type |
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05-27-2013, 03:15 PM | #5 | ||
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Dr Ahn is another one that recommends the angiogram and angioplasty to all his patients as his theory is he can tell where the compression is coming from.It may be a good test but he is the only one doing this for diagnostic purposes. With TOS everyone is different so a cookie cutter approach will never work. All the surgeons in L.A. only do the Transaxial Rib resection for all cases-you cant even get a PM MAC test here. Its too bad that this happens but explains why many people have to travel to see the right surgeon, and even then it may not be the right decision. I'm so sorry Parbie that this has happened to you-xo JKL |
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"Thanks for this!" says: | parbie (05-27-2013) |
05-27-2013, 08:01 PM | #6 | ||
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__________________
Parbie -6/20/14 Seroma Drainage Right Side -7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis -8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy |
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05-28-2013, 01:19 AM | #7 | ||
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Did the ultrasound show compression with your arms down or only raised?
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05-25-2013, 05:43 PM | #8 | ||
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I now shove it in myself every day with a strong exhalation while I do so. Prior to that I press my rib down from the top side, from the side of the neck. Somewhat like this: http://www.youtube.com/watch?v=qlTzS7PUaZc But of course, done very differently given that I'm doing it on myself. I don't have your other symptoms but thought I would share the notes above. Good luck. |
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