Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 05-27-2013, 08:01 PM #1
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Originally Posted by jkl626 View Post
I beleive that certain doctors do their preferred surgery or procedures on patients just to support their theory or research. Dr. Sanders research shows he believes that many cases of TOS are actually pec minor syndrome and therefore he was one of the only dr's to test the pec minor and did many pec minor tenomoties to prove his theory. I am assuming his protege Dr. Annest is following in his footsteps. Not to say that many MIGHT have pec minor involvement but not everyone especially if you have a cervical rib. It is also true that Dr. Thompson has just come up with 2 very beleivable studies that show that PM is the culprit in many cases but he also does other surgeries based on what he thinks the patient needs.And it looks like he does the most at once of any surgeons.

Dr Ahn is another one that recommends the angiogram and angioplasty to all his patients as his theory is he can tell where the compression is coming from.It may be a good test but he is the only one doing this for diagnostic purposes. With TOS everyone is different so a cookie cutter approach will never work. All the surgeons in L.A. only do the Transaxial Rib resection for all cases-you cant even get a PM MAC test here. Its too bad that this happens
but explains why many people have to travel to see the right surgeon, and even then it may not be the right decision. I'm so sorry Parbie that this has happened to you-xo JKL
Thank you Jkl, I appreciate it. I agree with everything you said above.I still believe I have pec minor issues but the tenetomy might not have been the way to go. Sanders did the same thing he def has a cookie cutter approach where he has to do a Scalene block and pec minor block and a new EMG done on everyone. I am lucky about the EMG though, it showed I have positive results on both sides. Kind of similar to Dr Lee situation, wasted my time yet I found out I have the subclavian artery being compressed with the ultrasound he requires for everyone walking through his doors. However I am sure I would have gotten that done with Donahue anyway, only thing is I found that out ahead of time and it will help me (and scare me blah) and definitely help Donahue during my visit with him.
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-6/20/14 Seroma Drainage Right Side

-7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis

-8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy
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Old 05-28-2013, 01:19 AM #2
fdupshoulders fdupshoulders is offline
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Did the ultrasound show compression with your arms down or only raised?

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Thank you Jkl, I appreciate it. I agree with everything you said above.I still believe I have pec minor issues but the tenetomy might not have been the way to go. Sanders did the same thing he def has a cookie cutter approach where he has to do a Scalene block and pec minor block and a new EMG done on everyone. I am lucky about the EMG though, it showed I have positive results on both sides. Kind of similar to Dr Lee situation, wasted my time yet I found out I have the subclavian artery being compressed with the ultrasound he requires for everyone walking through his doors. However I am sure I would have gotten that done with Donahue anyway, only thing is I found that out ahead of time and it will help me (and scare me blah) and definitely help Donahue during my visit with him.
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Old 05-29-2013, 12:19 AM #3
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Did the ultrasound show compression with your arms down or only raised?
Only raised at 180 degrees.
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-6/20/14 Seroma Drainage Right Side

-7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis

-8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy
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Old 05-29-2013, 12:25 AM #4
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I had the same result. I've been told by many doctors that the finding doesn't mean much, as many people without TOS would have the same result. The same goes for the different arm-positional pulse tests for TOS.

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Only raised at 180 degrees.
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Old 05-29-2013, 01:23 AM #5
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I think compression is common but full occlusion is indicative of VTOS and can be used as confirmation of NTOS clinical diagnosis.
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Old 05-29-2013, 12:18 PM #6
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Full occlusion in the ultrasound? As in the artery has 0 velocity? Parbie is that your case?

For me,

left side: arms down-156 cm/sec, arms up-342 cm/sec with some visual narrowing of vessel

right side: arms down - 85cm/sec, arms up-280 cm/sec with some visual narrowing
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Old 05-29-2013, 03:05 PM #7
parbie parbie is offline
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Quote:
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Full occlusion in the ultrasound? As in the artery has 0 velocity? Parbie is that your case?

For me,

left side: arms down-156 cm/sec, arms up-342 cm/sec with some visual narrowing of vessel

right side: arms down - 85cm/sec, arms up-280 cm/sec with some visual narrowing
My results say "right upper extremity PPG waveforms is diminished with 180 degree arm maneuver."
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Parbie

-6/20/14 Seroma Drainage Right Side

-7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis

-8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy
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