Hello,

I have had a total of 4 shoulder operations on the Left side due to misdiagnoses and a chiropractor manipulation...

2009 - Distal Clavicle Resection due to being at the time a competitive bodybuilder
03/2010 - manipulated by a chiropractor and experience the worst pain in my anter shoulder/chest area

03/2010-12/2010 - began experiencing weird symptoms in my shoulder - senesitive to touch over deltoid and popping in my shoulder with any movement. Hand and shoulder would cramp up and tingle

03/2011 - Another Distal Clavicle Resction and labrum repair - was believed the popping was coming from the bones still hitting each other

04/2011 - 2013 - Saw three TOS doctors and many shoulder doctors.My clavicle was diagnosed to be lax on both sides due to the chiropractor manipulation. TOS doctors said to stable Distal Clavicle. Symptoms of nerves getting caught with deep breaths, weird feeling over lateral and anterior shoulder, when walking or moving my arm nerves get caught below clavicle, neck balloons up along with chest during breathing

01/2013 - underwent surgery to stabalize distal clavicle AC Reconstruction

Now I am being seen by one of the best TOS doctors and shoulder doctors.

The TOS doctor isnt 100 % certain my sx's are from TOS because they are not typical but he is willing to do the operation. My shoulder doctor recognizes my SC joint is Lax as well and needs to be surgically repaired because I cant deal with the pain.

My dilema is I have the nerve issue and my other side of my clavicle issue. The shoulder doctor is 85% certain this will help my discomfort in that joint but not certain about the nerve issues.

Here are my symptoms that I have no other idea that could be but TOS

1) Ripping and tearing of my nerves below my clavicle around the deltopectoral groove area when walking, runing or moving my arm in flexion or extension. when nerves get caught and rip I can feel the sensation tear below the clavicle and can go down into bicep, shoulder, hand or forearm or palm of hand
2) Nerves getting caught and ballooning of my chest and neck during deep breathing - when nerves get caught and rip I can feel the sensation tear below the clavicle and can go down into bicep, shoulder, hand or forearm
3) Arm gets fatigued and tiredsome when hanging next to my side or doing anything
4) Ballooning (blowing up) of my chest during retraction of my shoulder
5) Tingling in all fingers
6) When abducting or raising my arm to the side or in front I get popping sensation above/below my clavicle - feels like scalene muscles popping over first rib or clavicle region
7) Scapula wings
8) When shrugging shoulders my nerves rip and tear when I let my shoulder down
9) Neck muscles (Scalenes) push up against clavicle more so than non affected side, especially when sitting or arms rested on something

Things that help
1) Protracting shoulder
2) Laying down on back

I used to be a competive bodybuilder and have undergone 3 shoulder surgeries from a chiropractor manipulation and have also undergone bilateral ulnar nerve transpositions of which each one had to be redone twice. So overall I have undergone 9 surgeries. I am exhausted and tired!

Has anyone experienced this ripping and tearing of nerves and the feeling of them getting caught with arm movements and with deep breathing