Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 07-31-2013, 06:36 PM #1
ramonlopes ramonlopes is offline
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Default Thenar shrinkage and Clean Exams

Hi all,

I am from Brazil and I really need help:

About 2.5 years, my pectoral, collarbone, armpit and hand on the right side of my body started hurting; I still feel that my blood flow decreases when I put my right arm in abduction. In addition, I have noticed a thenar shrinkage in my right hand (Doctors say that it is just a matter of asymmetry). I have already seen over 20 doctors and they say that I have nothing. In addition, all conducted exams were clean (Cervical Spine, Brain and Brachial Plexus RMI; Arms and Legs ENMG; Lombar Punction; Cervical Spine RX).

I really do not know what to do. I cannot just sit and watch thenar atrophy progressing.

Could some suggest me anything?
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Old 08-01-2013, 12:11 AM #2
16rhonda 16rhonda is offline
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Quote:
Originally Posted by ramonlopes View Post
Hi all,

I am from Brazil and I really need help:

About 2.5 years, my pectoral, collarbone, armpit and hand on the right side of my body started hurting; I still feel that my blood flow decreases when I put my right arm in abduction. In addition, I have noticed a thenar shrinkage in my right hand (Doctors say that it is just a matter of asymmetry). I have already seen over 20 doctors and they say that I have nothing. In addition, all conducted exams were clean (Cervical Spine, Brain and Brachial Plexus RMI; Arms and Legs ENMG; Lombar Punction; Cervical Spine RX).

I really do not know what to do. I cannot just sit and watch thenar atrophy progressing.

Could some suggest me anything?
Sorry to hear of ur problem. Iknow the Dr frustration thing.
If I recall the thenar muscle is on the inside of thumb on palm side. I think this happens with carpal T. Compression. Have u seen a Hand specialist? Someone who treats c.t. and hand arthritis. Your other sx could be related to tos. U really. Need a specialist in tos. Start searching n doing ur homework in ur area. Don't give up! U will find answers eventually. For some of us here it has taken yrs.
Good luck!



yrs.
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Old 09-04-2013, 11:31 PM #3
Lava1222 Lava1222 is offline
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Quote:
Originally Posted by ramonlopes View Post
Hi all,

I am from Brazil and I really need help:

About 2.5 years, my pectoral, collarbone, armpit and hand on the right side of my body started hurting; I still feel that my blood flow decreases when I put my right arm in abduction. In addition, I have noticed a thenar shrinkage in my right hand (Doctors say that it is just a matter of asymmetry). I have already seen over 20 doctors and they say that I have nothing. In addition, all conducted exams were clean (Cervical Spine, Brain and Brachial Plexus RMI; Arms and Legs ENMG; Lombar Punction; Cervical Spine RX).

I really do not know what to do. I cannot just sit and watch thenar atrophy progressing.

Could some suggest me anything?
Ramon, I had similar symptoms. I had pain in my shoulder blade, pec, armpit and hand. I also had significant atrophy in my hypothenar region. My testing (EMG, MRI) was negative, but according to the 3 TOS doctors I saw, that is quite common in this condition. I had many positive findings on exam however and all the "right" symptoms they tell me. I elected to do the first rib resection in April because my hand was starting to waste away and was getting quite clumsy. My surgeon said I was full of scar tissue when he opened me from all the years of friction in the area. My hand feels great now!!
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