Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-28-2013, 08:21 PM #11
LosingHope LosingHope is offline
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Tshadow, I truly feel for you. I had the same thing happen to me and it sucks. It makes it difficult to trust people. But when you find a person that makes the cut, you know they are golden.
I am glad you at least you have your husband to support you. I'm very sorry to hear about your mother and daughter - these are people that should love you unconditionally, so it really hurts to get this kind of treatment from them. My sister is still angry with me because I "wouldn't" help her move - in her mind, it's not that I couldn't, just that I wouldn't.
People can't understand if they've never experienced a chronic disorder. It's like how non-depressed people think depressed people should "just cheer up." It's ignorance, but that doesn't mean it doesn't hurt.
You should definitely keep trying, and bear in mind that all humans are fallible. We're pulling for you; let us know how it's going.
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Old 07-20-2014, 05:24 AM #12
Akash Akash is offline
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Quote:
Originally Posted by tshadow View Post
[SIZE="3"]My mother, my daughters and everyone else in my family has stopped interacting with me. Even though I send birthday cards, baby gifts, etc., it is as if I am a dead person.

My friends had the reaction that I am a liar and just don't want to work. (This after 11 years) Two of my friends, when I asked them to tell me the truth, said, "yes, I don't believe you have an injury. I doesn't make sense that sometimes you can talk and sometimes you can't."

So much for "good days" and trying so hard to be positive to them, happy for them, supportive of them, and not talk about my sickness all of the time.

My one friend called my husband (after 5 years) and said she was wrong, and could he please get me in touch with her. He said, only if you don't hurt her like last time. She promised. Then, when I was having a terrible time with a home aid - she was stealing, not getting food or water for me, I called my friend in tears and she said, "don't ever call me again - you are a spoiled brat and I don't want to hear that you don't have an 'assistant' that you like. You are a loser."

Have any other people had the freeze out, after you have been so generous to them? Should I keep trying? And what of my adult children? They are adults now, and I thought they would grow through it...but no, I am persona non-grata.

Thanks for any help. [/
The one thing this affliction does is quickly tell us who our real friends and support are. The fakers, taking advantage of types become well known. Its a harsh learning experience for those of us who moved through life assuming our friends are truly friends and not fakers.
My TOS was triggered through an accident caused by two of my so called friends. Words can't describe what I think of their motives and behavior thereafter. Other friends later told me that it was all in my brain.
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Old 02-07-2016, 10:26 PM #13
Susan DP Susan DP is offline
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Question Not only abandoned but betrayed

I moved home to take care of my elderly parents at the request of my brother after I got a divorce two years ago. I have been struggling with a neurological disorder and thought I would be embraced by my family and hoped they would help with the emotional wounds brought on by my divorce as well as with my physical challenges.
I couldn't have been more wrong. I have not only have been totally abandoned by my family but they have turned me over to adult protective services after my doctor explained my condition to them.
My mother has been bi-polar as long as I've known her and her behavior now, at 85, is frightening. My brother does what my mother tells him to do so he escapes her wrath. My 90 year old father Is afraid of her too. I've been too ill, at times, to leave my bed for months on end. When I am confined to my home I jump each time I hear a knock on the door. I am trying to mend but my mother is relentless and I know she will not stop harrassing me until I move back to where I came from. I'm sick physically and sick in my heart because of my family's behavior. I am stunned and don't have anyone to talk to. My old friends don't come to visit or check in on me. I feel like I've been left for dead.
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"Thanks for this!" says:
Lara (02-08-2016)
Old 02-08-2016, 01:24 AM #14
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Hello Susan,

Welcome to the NeuroTalk Support Groups.

I'm very sorry for the terrible way that you've been treated. You must feel very alone. I wanted to let you know that you will find very supportive and caring people on these forums. I'm sorry for your physical pain and I'm sorry for the pain in your heart. Talk to us...

There are several places you could post while you find your way around -

New Members Introductions Forum

Peripheral Neuropathy Forum

I also wanted to let you know that if you need to search specific words for you condition, you can do that with the

Forum Search Feature

Main Index NeuroTalk Forums

Most of all, don't give up.
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Old 02-09-2016, 01:44 AM #15
Susan DP Susan DP is offline
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Thank you for your kind words and encouragement. It means a lot. Family betrayal is a difficult subject to discuss as I hardly know what to say or where to start. I believe, ultimately, that my mother is a very unhappy woman and there has been at least two occasions over the last 5 years that she shocked me by telling me just how unhappy she truly is. She said she hated herself and constantly battled disturbing thoughts. She loves to shop for clothes and told me the only reason she goes to church is to get compliments on the way she looks from those she's acquainted with. I use the word acquaintance because I've never known her to have a friend. She spends her time at home reading novels, one after the other, which are usually fictional stories about multigenerational families. She lies at the drop of a hat and secretely listens to my father's phone calls without him knowing it. He is hard of hearing and doesn't hear her pick up the extension but I do. When I say Mom are you there she'll sometimes say yes while other times she'll hang up the phone without saying anything.at all. I know she has taken an antidepressant over the years but I think there's a lot more going on than depression. I'd like to discuss her behavior with her doctors but doubt there is much they can do unless she brings up the subject herself. I intend to move out of state in five months if my health will allow as that is the only way I see myself feeling safe from her threatening behavior.
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