Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 11-04-2013, 10:56 PM #11
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Yes, 100% yes. They thought I was crazy at first. My wife was having concerns that I had lost my mind. She even spoke to my mother and family about it. I pursued cause on my own, because doctors had no idea. I found the cause on my own and scheduled an appointment with a vascular doctor who knew TOS, and immediately ordered a dopplar ultrasound which showed all the compression of the subclavian artery which stopped the flow of blood in the vertebral artery. I had surgery eight weeks later.
Did they call it subclavian steal?...where the aorta steals blood from the carotid and vertebral flow to push thru obstruction in the subclavian?
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Old 11-04-2013, 11:07 PM #12
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Is the pulsing possibly a bruit?
you can hear one -
http://www.fistulafirst.org/LinkClic...U%3d&tabid=128

I get that sound/sensation when my neck muscles get tightened up, it was very bad during my severe spasms..was so bad I could barely sleep due to the constant heartbeat swooshing going on.. Scalenes & SCM tight or in spasm, can pinch the arteries causing the whooshing sound..

The MD's I went to had no clue when I described it, but the chiro told me what it was right away, and I had described it the same to each dr..

*But chiro was the only one to palpate my neck and feel the spasmed muscles..
at the time the whole upper portion of my body was in spasms..

https://www.google.com/search?q=brui...-a&channel=rcs
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Old 11-05-2013, 12:02 AM #13
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Yes, when my TOS gets bad, I get the pulsing in the neck, on the left side which is my TOS side, as well as a reduction in mental acuity.

For the pec minor, I do stretches which I have found to be very effective. I have to do them at least once a day.

I found stretches that target the scalenes, but unfortunately doing them flares me up. Dr. Art Ando (a PT) and others recommend anchoring the first rib down while stretching. It's a logical idea, but still didn't work for me.

Here are some things that have helped, though not as much as I want/need:

I do something I call "muscle relaxation meditation" which you can search for here on the forums. This reduces the tension in my neck and reduces my symptoms.

I've used diazepam in the past for the same purpose. But I didn't want to be on it indefinitely.

Another option is getting an experienced PT, chiro or neuromuscular massage therapist to work on your scalenes. I have a chiro that does this 3 - 4 X per month, including adjusting the first rib down.

Elimination "forward head posture" is an important step to improving scalene problems. You can search here and/or google for more info.

Avoiding certain exercises has been helpful in that these tend to make my neck tighter:
- push ups
- military press
- oblique crunches (tends to make me flex my neck too much)
- generally any upper body exercise

My latest experiment is doing soft tissue work on my own neck. It's been interesting. I've had a wildly successful session and a wildly miserable session. If I get something figured out in this area, I'll post here in the forums.

HTH
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Old 11-08-2013, 11:11 AM #14
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don't recall what phrase they used for it. I was told that in some people the flow slows, mine stopped completely and very few get a reverse flow.
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Old 11-08-2013, 11:07 PM #15
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don't recall what phrase they used for it. I was told that in some people the flow slows, mine stopped completely and very few get a reverse flow.
It is like the heartbeat swooshing sound. It can come with tight throat, dizziness, nausea, migraine, vision gets worse...I am starting to worry if this is dangerous???
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Old 11-08-2013, 11:27 PM #16
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It is like the heartbeat swooshing sound. It can come with tight throat, dizziness, nausea, migraine, vision gets worse...I am starting to worry if this is dangerous???
Well it sounds dangerous! I recommend keeping a detailed symptom log for 5 days or so and sharing it with your doctors. With all these symptoms you should be seeing both a neuro and a vascular. Maybe you already are; I did not track down your other posts to see.
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Old 11-09-2013, 09:20 PM #17
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It is like the heartbeat swooshing sound. It can come with tight throat, dizziness, nausea, migraine, vision gets worse...I am starting to worry if this is dangerous???

It sounds like it is. Have you gone to your doctor??? When do you go next?

I have had the tight throat only recently - the first time was about 2 months ago, and I have TOS for 10 years.

I have never had high blood pressure, however, all my life, my blood pressure has been extremely low, and it has been running normal for the past 5 years or so.
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Old 11-29-2013, 06:05 PM #18
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I can feel and actually hear the throbbing...this can't be good, does anyone else get this? It wakes me up feeling nauseous and a bit dizzy and cloudy like.
Hi there,
I too experience this continual whoosh/ pulsing sound in my left ear. Which only started post first rib excision surgery on my right side for V/ ATOS. Check out some of my past posts. I have asked many a question regarding this awful condition... Pulsatile Tinnitus.

I saw my Neurologist who agreed with my ENT consultant, in that it is likely due from the blood flow irregularities. And not to stress.

If it's not life threatening, then don't mess with it!
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Old 12-01-2013, 10:25 AM #19
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I have this in my left side sometimes, how do I know it's not just dysautonomia
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Old 12-01-2013, 09:26 PM #20
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Abegins, I had all that you explain prior to my surgery. I do not have it anymore on my surgery side. I get it once in awhile on my non surgery side, but some stretching and it goes away.
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