Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 12-09-2013, 02:13 PM #1
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Default Dissapointed in my family

What a day! I was stupid enough to call my mother. BTW all my family lives overseas.

She pretty much flat out told me that there is nothing she can do for me since they are so far away and her and my brother are sick of hearing about my health problem, everything is so gloom and doom.

I have no idea why I was blessed with the crappiest family on earth. Emotionally crippled people that have no empathy for anyone and always worried about their own problems.

I'm so sad today. I won't even call them for Christmas.
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Old 12-09-2013, 03:42 PM #2
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It's often hard for family to be empathetic about something they can't see. It's worse for you because they don't even see you in person to see you struggle. All of us have faced this in one degree or another from someone because TOS is so misunderstood and it's impossible to "see." And people tire of hearing about someone's pain and they feel bad for not being able to help. Sometimes that's expressed in a weird way. That's why this forum is important for support.
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Old 12-09-2013, 04:25 PM #3
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Some people are just toxic and self centered, if they are generally non supportive/unsympathetic you might as well distance yourself.
Added stress of any kind will not be helpful at all.
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Old 12-09-2013, 04:31 PM #4
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I really don't understand what it takes for people to believe you. If your arm isn't chopped off then surely it must be just fine.

This is not the first time they've done this to me as I've had depression problems in the past and they treated me the same way. I'm just amazed I never get to learn my lesson. Then they wonder why I won't move back to Europe to be closer to them. What for? It's not like they are nice anyways.
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Old 12-12-2013, 01:56 AM #5
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[QUOTE=Nellyzen;1035527]What a day! I was stupid enough to call my mother. BTW all my family lives overseas.

She pretty much flat out told me that there is nothing she can do for me since they are so far away and her and my brother are sick of hearing about my health problem, everything is so gloom and doom.

I have no idea why I was blessed with the crappiest family on earth. Emotionally crippled people that have no empathy for anyone and always worried about their own problems.

I'm so sad today. I won't even call them for Christmas.[/QUOTE

My boyfriend told me if I am not better by summer I need to move out, because he doesn't feel he should have to take care of a cripple the rest of his life.

My mom brought me to the hospital when I thought I had a blood clot then left - 60 miles from where I live. I called my brother, he said call your boyfriend, see above.
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Old 12-12-2013, 09:11 AM #6
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I'm sorry to hear that...that is really awful.
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Old 12-13-2013, 09:48 AM #7
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Nelly and Eight - I hear ya loud and clear.

Nelly: I think I may have you beat on "Crappiest Family". At least yours come right out and tell you they can't help. The one family member in my city who can help (simply by being present for our Mom) tells me he will be there any time I need him, then "isn't".

Eight: Good riddance to bad rubbish. Another TOS poster said this once and it stuck with me:
"He was never the man I thought he was. That makes me sad, but not as sad as I was when I thought if I could just do something differently, it would go back to how it used to be.

Being sick or in pain shows you who you can really depend on when the chips are down. Some spouses just don't make the cut."
hang in there and be good to yourselves!
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Old 12-13-2013, 01:28 PM #8
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I'm sorry to hear...it is so sad to be sick and have no support from the family.
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Old 12-16-2013, 07:43 AM #9
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I am sorry you have to go through this. My wife and family at the beginning thought I was actually going crazy. After diagnosis and a couple surgeries, they have been nothing but supportive.
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Old 12-16-2013, 08:52 PM #10
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Quote:
Originally Posted by brmr19 View Post
I am sorry you have to go through this. My wife and family at the beginning thought I was actually going crazy. After diagnosis and a couple surgeries, they have been nothing but supportive.
lol, sometimes I feel like I am going crazy...this disability is so insidious!
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