Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 09-24-2015, 02:12 AM #41
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I was sent to Dr Lum for a consultation during my tour of the many JH specialists who didn't want to take my case.
I didn't wind up getting my surgery from him.
I've heard many good things about him, and I don't know how these other patients got Dr. Lum to participate in their care with such interest and vigor.
Maye I got him on an off day. who knows.

I was sent to Dr. Lum by my JH neurologist, had a history of brachial plexus lesions and a long thoracic nerve stretch injury. (I also had a few others Dr's who previously wanted to do the rib resection surgery, but I was unable to get it due to my insurance before). Incorrect PT and lack of treatment have left me pretty much totally disabled, unable to raise my right arm, care for myself, or dress and do daily tasks without help.
I had the doppler test performed the same day as my appointment. (My right arm showed symptoms of venous compression such as turning pale, blue, and being ice cold even under a heating pad. I'd also had the doppler test done before outside of JH which showed significant venous compression)
The technician struggled with performing the test as my shoulder no longer bends in the typical diagnostic stress position, even when pushed. She did not make note of this, but performed the test anyway which did not show any venous compression.
My consult with Dr. Lum and another specialist was very brief. Dr Lum spent the whole time on the computer, and the other specialist was texting on his phone. Dr. Lum said with the negative test results my best course of treatment would be for me to get out more and try to be social.
When I pushed him for an Actual idea for a course of treatment, he told me he didn't do surgeries for fun. I reminded him of my months in PT, list of other specialists, failed treatments, and energy put into finding a solution, saying I was clearly willing to go the distance to try and get my life back on track.
He acquiesced to send me to the pain center for diagnostic lidocaine shots in my scalenes, but said they would likely fail to produce results and I should find a neurologist, and then excused himself.
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Old 09-24-2015, 12:05 PM #42
Akash Akash is offline
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Quote:
Originally Posted by SnappleofDiscord View Post
I was sent to Dr Lum for a consultation during my tour of the many JH specialists who didn't want to take my case.
I didn't wind up getting my surgery from him.
I've heard many good things about him, and I don't know how these other patients got Dr. Lum to participate in their care with such interest and vigor.
Maye I got him on an off day. who knows.

I was sent to Dr. Lum by my JH neurologist, had a history of brachial plexus lesions and a long thoracic nerve stretch injury. (I also had a few others Dr's who previously wanted to do the rib resection surgery, but I was unable to get it due to my insurance before). Incorrect PT and lack of treatment have left me pretty much totally disabled, unable to raise my right arm, care for myself, or dress and do daily tasks without help.
I had the doppler test performed the same day as my appointment. (My right arm showed symptoms of venous compression such as turning pale, blue, and being ice cold even under a heating pad. I'd also had the doppler test done before outside of JH which showed significant venous compression)
The technician struggled with performing the test as my shoulder no longer bends in the typical diagnostic stress position, even when pushed. She did not make note of this, but performed the test anyway which did not show any venous compression.
My consult with Dr. Lum and another specialist was very brief. Dr Lum spent the whole time on the computer, and the other specialist was texting on his phone. Dr. Lum said with the negative test results my best course of treatment would be for me to get out more and try to be social.
When I pushed him for an Actual idea for a course of treatment, he told me he didn't do surgeries for fun. I reminded him of my months in PT, list of other specialists, failed treatments, and energy put into finding a solution, saying I was clearly willing to go the distance to try and get my life back on track.
He acquiesced to send me to the pain center for diagnostic lidocaine shots in my scalenes, but said they would likely fail to produce results and I should find a neurologist, and then excused himself.
Were you in pain when you had a consult and this happened? One amazing (not really) thing I discovered. Most doctors don't have any training in dealing with patients in pain or whose body language shows stress, and they tend to treat these very patients dismissively. Its almost as if they can't deal with folks in trouble, so they disguise this by being rude or ignoring the patients. I have learnt the hard way to keep my interaction with many doctors as artificially polite as possible. Ha Ha doc, yes I am in pain, ha ha, its all right, ha ha, yes you know everything, now can you help me? Never mind they tend to get upset with patients who actually have done their own research. How I hate TOS!
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dr. lum, dr. ricotta, john's hopkins, thoracic outlet syndrome, wash. hospital center


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