I have recently been diagnosed with venous Tos. I noticed my whole right arm was swollen and was admitted to Washington Hospital Center where I had an ultrasound, CT scan and Venogram/angioplasty performed. My subclavian vein is currently %50 open I have had visits with Dr. John Ricotta at Washington Hospital Center, as well as Dr. Ying Lum at John's Hopkins and wanted to see if anyone has had TOS surgery performed with these surgeons and what there experience was like.

I sent a private message to you.

dwr37 I am interested in any information you have about doctors, I am new to this forum and still trying to figure out how to send messages thanks

New members cannot access Private Messages for a brief time. All newbies are watched for a short time to screen for spamming potential. Keep posting here, and soon you will be activated.

I think you can click on your user name in the upper right corner to see the visitor message that was sent. Eventually you can get private messages, but not yet.

ok thanks for the info

Hello,
My name is Yana. I had neurogenic Tos and was operated by Dr. Ying Wei Lum
at John Hopkins 6 month ago. My surgery was 100 % successful and I feel great. I also liked Dr. Lum 's personality a lot.He gave me his email and I asked him a lot of questions before and after surgery and he always got back to me quickly. I think he is talented young surgeon and I recommend him a lot, even thought I understand that each case is different.

Hello YanaO,

Thank you for the response, I met with Dr. Lum am getting the same feeling, I like his personallity, he is very attentive and answers all my questions. Do you mind sharing what your recovery was like post surgery, how long was the hospital stay? Were there any complications such as collapsed lung, and how long before you were able to feel better and return to work?

Hello,

I was recently diagnosed with venous&arterial TOS by my local hospital and my surgeon wants me to get half of my 1st rib and scalene muscles removed. Someone spoke with me and told me that Dr. Lum is the best surgeon for TOS surgeries so I recently met with him for another opinion. His personality was great and explained my two pages of questions. At first he wants me to get lidocaine injections in my scalene muscles to see how that goes before we schedule surgery to remove the entire rib and snip the two scalene muscles. I'm trying to make the decision to either get surgery close to home, or travel hours to JH to get Dr. Lum to do it.

For those who did get their surgery by him, how was the surgery/post surgery and your stay at JH?

I would suggest rather than deciding whether to stay close to home or travelling hours to JH for surgery, that you make your deciding factor be the surgeon's experience performing this surgery.