ATOS is arterial
VTOS is venous
NTOS is Nerve

disputed TOS is usually when not a clear cut option of the above, usually related more to past injuries or repetitive issues.

Hello! I had Arterial TOS on my left side. As I said there, upper plexus which is also a bit rare (arterial TOS is also relatively rare I heard). My case was hopeless. First of all, it was correctly diagnosed only after many years of different types of symptoms which progressed over time (I was basically born with this anomaly). I got botox injections every 3-4 months since 2007, this only made my TOS worse. By the time I had my diagnosis, PT could not save me anymore although I really tried it. It gave me bad flare ups. So, surgery was my only option, especially since it was arterial and I had many problems with blood circulation, heaviness of arm, even though most of the physicians I saw would not believe me. I had first rib resection and scalenectomy in Dec 2013. So far I am doing well. Most of the symptoms are gone. Nerve pain is still an issue but this terrible numbness is gone (have it very rarely, but nerve related). PT 2 x a week with just scar treatment. In a few months, I will be able to slowly do work out to get my strength back.

So just in case. I hope that the injections will work for you.

All the best!

According to the vascular surgeon we used, with Arterial TOS, PT does make it worse. The body naturally moves to a slumping position to help restore blood flow.

To the OP, I, too, wish you the best.

To Nelly: But, aren't you getting surgery soon?? What happened?

This is interesting.

First, I had a pec minor release, six months prior to any botox. With this I got feeling in the ring finger which stayed. I got feeling in the pinky and middle finger, but it faded. Forgot fingers felt so much prior to this.

When I got my anterior scalenes Botoxed, I got feeling back in my little finger, more in the ring finger, and middle finger. I got some feeling in the index finger and thumb, but it went away.

Six weeks after that I got the middle scalenes Botoxed. Then I got zinginging nerve sensation and some feeling back in the index ringer and thumb.

Does this mean one could determine if they have ATOS and/or ntos based on which fingers are numb?

I thought I just had ntos, but it turns out I have both.

Which muscle relaxant do you take? Are there any effective ones safe for long term use? I used Celexocib (antiinfllammatory) but its linked to several scary diseases when used constantly.