Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.

 
 
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Old 11-07-2015, 02:46 PM #1
Nellyzen Nellyzen is offline
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Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Nellyzen Nellyzen is offline
Member
 
Join Date: Dec 2013
Location: Arizona
Posts: 320
10 yr Member
Default Update on my health

Hello everyone,

I haven't stopped by in a while mainly because I've tried to forget about TOS this summer. It's not easy to forget about something that hurts every day but reading about it all the time gives me anxiety.

So it's been a year since the surgeries. Although the blood flow is good, the pain is still there. I still can't work or do any extended activities. I've been seeing a neurologist since May and have gone through another round of PT which has done nothing. I was referred to a local TOS surgeon who ordered an MRI to see what is going on with the brachial plexus. I probably need a reop but it really needs to be done by a top TOS surgeon so it seems the only viable option is Boston. I don't like it because I'm not a fan of out of state care and it's very expensive but what other options do I have?

I've been reading around here today and I'm sorry to see a lot of you are still suffering, just like me.

Sending everyone a hug!
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