NeuroTalk Support Groups - I can feel my fingertips for the first time in ten years

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- Thoracic Outlet Syndrome (https://www.neurotalk.org/thoracic-outlet-syndrome/)

- - I can feel my fingertips for the first time in ten years - Botox, Dr. Donahue (https://www.neurotalk.org/thoracic-outlet-syndrome/204285-feel-fingertips-time-ten-botox-dr-donahue.html)

Surgery is scheduled!

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Originally Posted by Eight (Post 1079805)

Surgery is scheduled!

congratulations! That must feel good!

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Originally Posted by jkl626 (Post 1079894)

congratulations! That must feel good!

Well, it is the third time I've had a rib resection scheduled. Once with a doctor in town that I decided not to go with. Then once with Annest/Sanders who decided they weren't going to do it nine days beforehand after plane tickets had been bought and all arrangements had been made.....

With Dr. Donahue? Apparently people say he's used to complicated cases, so you shouldn't fear getting dropped then.

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Originally Posted by Eight (Post 1079180)

First botox shot seemed to have stopped working last night. Called and was told it isn't supposed to just stop like that, may just be a flare. Anyway, I'm ready to have surgery....

Eight - This was my experience with botox on the side that I had severe nTOS (positive EMG/NCV, obvious muscle atrophy, etc.). The day it wore off it was like going from 0 to 100 in 10 seconds flat. For three glorious weeks, I had absolutely no symptoms and then it came back with a vengeance. My doctor also told me that it's not supposed to wear off like that. I decided to do surgery and glad I did as I am still symptom free nearly 10 years later.

Good luck with your upcoming surgery!

Okay, so I might have found a doctor 50 miles from me that does the botox. He is a pain specialist. My arm started going cold and I went to the ER in that city, well the vascular surgeon in the ER told me not to have the surgery. Hey told me he would send some emails and his office would call me Monday morning. Well, the next day he called me with the name of a guy, Dr. Peter Piperis whose website says that he does "scalene block with fluoroscope". I will call first thing Monday morning.

In that case I will probably put off my surgery, for at lest one year, and hopefully indefinitely.

Have an appointment Friday. We will see....

Hi there Glad ur seeing some light at end of tunnel.
Was wondering if u got botox for tos or pec minor? Do u know if Dr. D. Treats or Dx peck minor syndrome?

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Originally Posted by Eight (Post 1068416)

It is amazing! I got the bilateral botox injections at 10 am on Tuesday. By noon, my right lung was breathing deeply, around 1 pm I got this strange bilateral tingling in my quads that lasted for two seconds, and then my left lung immediately kicked in breathing deeply.

When I got on the plane to go home around 4pm I took a strong muscle relaxant to help with the trip home. Within 20 minutes I could feel all of my fingertips (not as much with the pointer finger and thumb, and I have been able to feel the ring fingers since December following a bilateral pec minor release). I was so happy I started crying. This guy sitting next to me actually moved seats because he, I am sure I looked like a loon smiling with tears streaming down my face while touching my fingertips intently.

Spent part of Wednesday calling the jackass doctors in town who said it was all in my head letting them know that the botox helped. Partly for self satisfaction, and partly in an effort to prevent them from doing the same to someone else.

Went to work yesterday (desk job typing)made it until 45 minutes prior to going home okay (not great, but manageable discomfort) then became completely exhausted went home and slept 12 hours.

Stayed home today, hoping for more improvement over the weekend. Fingers are hypersensitive. Grasping muscles in hands have clearly atrophied. Heavy doors are not so heavy. Actually opened one particular door in a public place twice because I had always dreaded it, and it was so much lighter than in the past, I just wanted to double check it then walked away smiling because opening that door and finding it manageable was just awesome. Finding myself confused with the sense of touch. I feel like the blind man given his sight back.

Quote:

Originally Posted by 16rhonda (Post 1082261)

Hi there Glad ur seeing some light at end of tunnel.
Was wondering if u got botox for tos or pec minor? Do u know if Dr. D. Treats or Dx peck minor syndrome?

Yes, both I believe. He made a special note that they weren't going to botox the pec minor because I had the pec minor release done in December 2013.

I found. Doctor here that does botox, but only as a diagnosis. They are going to do bilateral anterior scale botox at 90 days from the first shots. I still have surgery scheduled. Surgery is sort of dependent on my finances at this point.

:confused:[QUOTE=Eight;1082919]Yes, both I believe. He made a special note that they weren't going to botox the pec minor because I had the pec minor release done in December 2013.

I found. Doctor here that does botox, but only as a diagnosis. They are going to do bilateral anterior scale botox at 90 days from the first shots. I still have surgery scheduled. Surgery is sort of dependent on my finances at this point.[/QUOTE

So, did Dr Donahue do your Pec minor release? Do most drs use Botox just for dx vs. maintenance? What about PT for TOS?
I saw a Dr Lee a Hand/BP nerve Ortho Specialist at mgh recently & told him what Dr Sanders says that 75% of people who have tos also have Pec minor syndrome.
Dr Lee said that's bunch of bull!!!! He only did this surgery on one pt.
Who do u believe?
Is all this info. On google just to get your business, makes u wonder!
Thanks tor the info.