First botox shot seemed to have stopped working last night. Called and was told it isn't supposed to just stop like that, may just be a flare. Anyway, I'm ready to have surgery....

Dr. Donahue is looking through my chart again and then will decide if he will do my surgery. I also got a copy of my nerve conduction tests from when I was a baby because I had a brachial plexus injury in the right side from being born. I got all better, except I hold pencils kinda funny, that is the only remaining possible sign. I did just read it today and it said that my c5 and c6 nerve roots were damaged outside of the spine, I don't really know if this matters or not. Anyway, I've never noticed any problems, lol, not that I would know what I was supposed to feel like if that is the way I had always felt....This birth injury is part of the reason that Dr. Sanders decided to cancel the surgeries I had scheduled with them last February, which means there is a tendency to cherry pick since I am a "difficult" case.

For one whole week when I had both the anterior and median scalenes Botoxed I felt really good. I had energy, like someone who is normal must feel like. It was nice. . If Dr. Donahue won't do my surgery, he is willing to continue my botox indefinitely it seems, so becoming a homeless person in Boston is still an option.

On a happy note, my boyfriend has agreed to come with me for my surgeries and help pay part of the expenses!!! I was pretty sure he would, but just for shits and giggles I sent a group text message earlier today to my parents, brother, and sister to see if any of them would come with me for my first surgery....none of them responded at all.

Nurse Julie said she would call a social worker if I didn't have anyone to come with me so than arrangements could be made. It's a relief to know that's an option if needed.

Surgery is scheduled!

congratulations! That must feel good!

Well, it is the third time I've had a rib resection scheduled. Once with a doctor in town that I decided not to go with. Then once with Annest/Sanders who decided they weren't going to do it nine days beforehand after plane tickets had been bought and all arrangements had been made.....

With Dr. Donahue? Apparently people say he's used to complicated cases, so you shouldn't fear getting dropped then.

Eight - This was my experience with botox on the side that I had severe nTOS (positive EMG/NCV, obvious muscle atrophy, etc.). The day it wore off it was like going from 0 to 100 in 10 seconds flat. For three glorious weeks, I had absolutely no symptoms and then it came back with a vengeance. My doctor also told me that it's not supposed to wear off like that. I decided to do surgery and glad I did as I am still symptom free nearly 10 years later.

Good luck with your upcoming surgery!

Okay, so I might have found a doctor 50 miles from me that does the botox. He is a pain specialist. My arm started going cold and I went to the ER in that city, well the vascular surgeon in the ER told me not to have the surgery. Hey told me he would send some emails and his office would call me Monday morning. Well, the next day he called me with the name of a guy, Dr. Peter Piperis whose website says that he does "scalene block with fluoroscope". I will call first thing Monday morning.

In that case I will probably put off my surgery, for at lest one year, and hopefully indefinitely.

Have an appointment Friday. We will see....