Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 03-20-2015, 12:40 AM #15
16rhonda 16rhonda is offline
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Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
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Hi Eight
I hope your sx get better soon! I know the tos surgery flare the nerves up for least 4 wks. Its been 1 1/2 yrs postop my rt tos surgery w Dr D. and I still have the new burning sensation in my ring and middle fingers. Numbness in pinky &ring fingers is number than it was bf surgery. I ended up w permanent chest numbness on my lt side, but the pain is much better on Lt. So guess its a trade off! I'm scheduled for Pec M. Tenotomy 3/26 and getting nervous cuz I dont know what to expect as far as not being able to lift your arm take a shower, drive. What was your recovery like for the Pec minor? Did the surgery cause u any new numbness? Having my Rt side done & I'm Rt handed. I take it Dr D doesn't do a lot of these, cuz he says Pec m is rare only 8% of people who have tos also get Pec m. Did u have a piece of the Pec m muscle taken out?
Keep us posted on you recovery!

Quote:
Originally Posted by Eight View Post
Hello, everyone! Turning this thread into my personal blog I guess. When I was deciding on a doctor/treatment, I was following people's posts on here, but their posts were all spread out. Hopefully, keeping some of my updates here will be helpful.

Okay, Thursday was 4 weeks post my right side first rib resection, anterior and middle scalenectomy and removal of scar tissue from the brachial plexus. (Dr. Donahue)

I am 7 months post surgery on my left side first rib resection, anterior and middle scalenectomy and removal of scar tissue from the brachial plexus. (Dr. Donahue)

I am 15 months post surgery for a bilateral pec minor release. (Drs. Annest/Sanders).

So my right side surgery went smoothly. I have numbness a the end of all of my fingertips and the 4th and 5th digits. It is slowly getting better since surgery. However, being able to compare the two sides has been an great thing, because I can tell that the left side usually feels better than the right.

My left side is more cordinated than my right side at this point with all gross motor skill. I am right handed.

I currently that whole, "they took a bone saw to me" feeling in the rib (which a lidocaine patch to the back seems to help alot - along with hydrocodone and advil). I know from my previous surgery that this feeling really starts to go away at 6-8 weeks when the rib bone has capped itself off. I was also given Soma, by the neurologist, I think mostly so that I would sleep and recover.

However, nerve pain is definately going to be a lingering problem for me. Nerves regenerate at 1 inch per month. I am guessing that it will take about 3 years for my nerves to regenerate and I won't have the nerve pain anymore. My left side is already less painful than my right as far as nerve pain goes, but it is still pretty intense.

I quit taking gabapentin because I gained 60 pounds on it (stopped this sometime in November 2014 and have already lost 15 pounds just laying around, so that's happy). Tried Keppra, but it made me dizzy, now trying Tegrital.

I also take r-lipoic acid, b-12, multivitamin and use a TENS Unit with gloves every day for at least 20 minutes.

Typing sucks - my fingers are all confused - 4th digit is about two letters behind all the other fingers on both hands.
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