Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 06-02-2014, 02:20 PM #1
20YrsTOS 20YrsTOS is offline
Junior Member
 
Join Date: Jul 2013
Posts: 80
10 yr Member
20YrsTOS 20YrsTOS is offline
Junior Member
 
Join Date: Jul 2013
Posts: 80
10 yr Member
Default 6 Month Post-Op Update

Hello Everyone. I hope and pray all is well with you all.

It's been a while since I've written anything, but I've been doing my PT. Thought I would give you guys a quick update, and leave some questions hoping someone can answer them.

First, many of you know I had a rib resection and scalenectomy on my left arm in Dec of last year. Had two previous surgeries on right arm, which was not successful. I've been dealing with TOS for 21 yrs.

Okay, as stated above I've been doing PT. Well PT was NOT successful. I can't only lift my left arm only halfway. The arm will not lift up or go over my head. My PT thinks the arm is in a frozen state. They call it, "Frozen Shoulder". Also, when the PT was doing all the procedures on my left arm, he notice while performing the strength test for both arms, my right arm strength is down to 5. Basically this means my strength is almost gone in the right arm. I still have swelling in both arms and chest areas. Especially around the incisions. The pain decreased just a little, but still painful. I still can't sleep. Only 3 hours of sleep. The PT notice I was not getting better and we decided to stop all treatments. By the way, he told me about this TEN machine, so I purchase one. Your insurance should cover this. I also was informed by this sales guy at my doctor's office about a machine called, Flexitouch. It suppose to help with the swelling, but it did not help, so I return it. The ten machine gives me a little relief. It's a stimulation machine.

I'm seeing an Orthopedic doctor next week regarding this shoulder issue, and I will see my doctor in about three weeks. My doctor and I have a lot to discuss. :0)

Can someone answer this question?

1) Have any of you experience a frozen shoulder after your surgery? If so, what did u do to get your arm to move again.


Sorry for the long post, and I will keep you all updated. My doctor did inform it could take a 1 1/2 before I get better. So I'm being patient with the process. You all be bless, and we need to continue to fight this TOS.

Thanks
20YrsTOS is offline   Reply With QuoteReply With Quote

advertisement
Old 06-02-2014, 05:48 PM #2
kellysf kellysf is offline
Member
 
Join Date: Mar 2007
Posts: 282
15 yr Member
kellysf kellysf is offline
Member
 
Join Date: Mar 2007
Posts: 282
15 yr Member
Default

I'm sorry you didn't have much luck with PT. I had the same experience of having PT hurt rather than help. I hope the next 12 months go better for you.

Take care,
Kelly
kellysf is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
20YrsTOS (06-02-2014)
Old 06-02-2014, 10:21 PM #3
Eight Eight is offline
Member
 
Join Date: Oct 2013
Location: Midwest, USA
Posts: 370
10 yr Member
Eight Eight is offline
Member
 
Join Date: Oct 2013
Location: Midwest, USA
Posts: 370
10 yr Member
Default

I haven't had rib resection or frozen shoulder. I have a TENS and I love it though. Glad it is providing you some relief.
Eight is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
20YrsTOS (06-02-2014)
Old 06-10-2014, 06:19 PM #4
romans8 romans8 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 88
10 yr Member
romans8 romans8 is offline
Junior Member
 
Join Date: Aug 2012
Posts: 88
10 yr Member
Default

I had a frozen shoulder going into my surgery. However the frozen shoulder was on the left side and the surgery on the right. The PT "unthawed" it by moving it to it's limits and it went away over two to three months. It was painful but similar to PT after a shoulder surgery. It seems it would be tricky on your surgery side but that is the only way to improve it.
romans8 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
20YrsTOS (06-12-2014)
Old 06-12-2014, 11:00 PM #5
20YrsTOS 20YrsTOS is offline
Junior Member
 
Join Date: Jul 2013
Posts: 80
10 yr Member
20YrsTOS 20YrsTOS is offline
Junior Member
 
Join Date: Jul 2013
Posts: 80
10 yr Member
Default

Quote:
Originally Posted by romans8 View Post
I had a frozen shoulder going into my surgery. However the frozen shoulder was on the left side and the surgery on the right. The PT "unthawed" it by moving it to it's limits and it went away over two to three months. It was painful but similar to PT after a shoulder surgery. It seems it would be tricky on your surgery side but that is the only way to improve it.
Thanks Roman for the info. The PT I was seeing was stretching the arm as far it could go, but no success. Going to see my surgeon in two weeks, I'm hoping he has another plan. Will keep you all updated.
20YrsTOS is offline   Reply With QuoteReply With Quote
Old 06-16-2014, 09:31 PM #6
sec161 sec161 is offline
Junior Member
 
Join Date: Mar 2013
Posts: 29
10 yr Member
sec161 sec161 is offline
Junior Member
 
Join Date: Mar 2013
Posts: 29
10 yr Member
Default

Dr. Gelabert (UCLA Vascular Surgeon) has brought this up before as a concern after rib resection or scalenectomy if you aren't moving your shoulder joint enough post-op. My fiancé had bicep reattachment and during recovery suffered Frozen Shoulder - it was awful! Through PT and chiropractics (we have a no-cracking chiro here) he was able to get close to his previous ROM. I wish you lots of luck, it is not an easy recovery but it is possible.
sec161 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
20YrsTOS (06-16-2014), Sea Pines 50 (06-16-2014)
Old 06-16-2014, 11:44 PM #7
20YrsTOS 20YrsTOS is offline
Junior Member
 
Join Date: Jul 2013
Posts: 80
10 yr Member
20YrsTOS 20YrsTOS is offline
Junior Member
 
Join Date: Jul 2013
Posts: 80
10 yr Member
Default

Quote:
Originally Posted by sec161 View Post
Dr. Gelabert (UCLA Vascular Surgeon) has brought this up before as a concern after rib resection or scalenectomy if you aren't moving your shoulder joint enough post-op. My fiancé had bicep reattachment and during recovery suffered Frozen Shoulder - it was awful! Through PT and chiropractics (we have a no-cracking chiro here) he was able to get close to his previous ROM. I wish you lots of luck, it is not an easy recovery but it is possible.
Thanks for the info. I've been reading a lot about frozen shoulders, and it's not an easy process. I'm not in a hurry, so if it's a year or so, I'm willing to wait to get better. :0)

GOD BLESS!!!
20YrsTOS is offline   Reply With QuoteReply With Quote
Old 06-17-2014, 04:03 PM #8
brisco71 brisco71 is offline
Junior Member
 
Join Date: Dec 2013
Location: Louisville, Kentucky
Posts: 67
10 yr Member
brisco71 brisco71 is offline
Junior Member
 
Join Date: Dec 2013
Location: Louisville, Kentucky
Posts: 67
10 yr Member
Default

I ended up with both a winged scapula and a frozen shoulder as a result of my rib resection. I'm nearly 5 months out. I did PT for about 2 months, and got some improvement, but I still have a long way to go. I had to put PT on hold because it was just too painful and I could no longer tolerate pain meds. I'm hopeful that it will eventually get better.
brisco71 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
20YrsTOS (06-17-2014)
Old 06-17-2014, 10:43 PM #9
20YrsTOS 20YrsTOS is offline
Junior Member
 
Join Date: Jul 2013
Posts: 80
10 yr Member
20YrsTOS 20YrsTOS is offline
Junior Member
 
Join Date: Jul 2013
Posts: 80
10 yr Member
Default

Quote:
Originally Posted by brisco71 View Post
I ended up with both a winged scapula and a frozen shoulder as a result of my rib resection. I'm nearly 5 months out. I did PT for about 2 months, and got some improvement, but I still have a long way to go. I had to put PT on hold because it was just too painful and I could no longer tolerate pain meds. I'm hopeful that it will eventually get better.
Thanks for the info, and I hope things will improve for u. I've read that it takes almost a year and half to recovery from a frozen shoulder. I know how you are feeling, but hang in there. My surgeon informed me it's going to take almost a year and half to see improvement. So take it one day at a time, and don't over do it. Thanks for the reply.
20YrsTOS is offline   Reply With QuoteReply With Quote
Old 06-18-2014, 08:07 PM #10
brisco71 brisco71 is offline
Junior Member
 
Join Date: Dec 2013
Location: Louisville, Kentucky
Posts: 67
10 yr Member
brisco71 brisco71 is offline
Junior Member
 
Join Date: Dec 2013
Location: Louisville, Kentucky
Posts: 67
10 yr Member
Default

Quote:
Originally Posted by 20YrsTOS View Post
Thanks for the info, and I hope things will improve for u. I've read that it takes almost a year and half to recovery from a frozen shoulder. I know how you are feeling, but hang in there. My surgeon informed me it's going to take almost a year and half to see improvement. So take it one day at a time, and don't over do it. Thanks for the reply.
Yes, that's all we can do, wait it out. I am used to a "new normal" at this point. I know my limits, even my 6yo knows not to ask me to push him on the swing.LOL
brisco71 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
UPDATE-Two Month Post Ops and Question regarding knots in shoulders 20YrsTOS Thoracic Outlet Syndrome 0 02-01-2014 12:52 AM
Five Month Update Vanilla Bean Traumatic Brain Injury and Post Concussion Syndrome 0 12-12-2013 05:54 PM
18 Month Reboot Update 4-eyes Myasthenia Gravis 3 05-30-2012 06:35 PM
2 month update steelrat Traumatic Brain Injury and Post Concussion Syndrome 1 12-15-2011 04:17 PM
5 month update freezerdoor Traumatic Brain Injury and Post Concussion Syndrome 6 08-25-2011 02:48 PM


All times are GMT -5. The time now is 11:41 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.