Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 05-28-2007, 08:12 PM #1
phoebe phoebe is offline
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Default Hi, I'm phoebe

Hi, my name is phoebe. I was a member of the TOS forum on the old forum. I've been reading here since last Sept. and have seen what a nice bunch of people are still here, and still helping each other.

I wrote a longer post on the main introduction page, and am reluctant to type too much right now, but I've missed my friends here. I want to express my deep sorrow to Di for the loss of your beautiful De, to Ada for the loss of her husband, and to tell Martha I was scared to death until I found you were going to be ok. phoebe
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Old 05-28-2007, 08:19 PM #2
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Default glad to see you

Hi Phobe
Thank you so much for your concern for me, DiMarie and Ada.
Yes, there is never a dull moment around a tos'er

I hope you are doing ok and we'll see you around the forum

M
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Old 05-28-2007, 08:26 PM #3
phoebe phoebe is offline
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Default Thanks Martha

You still send the prettiest flowers ever, and I am so glad you're ok. I think the asthma everywhere has been worse this year than in a long time. That not breathing must be the most horrifying experience ever.
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Old 05-28-2007, 09:23 PM #4
redjpwranglergirl redjpwranglergirl is offline
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Hi Phoebe!
So nice to see you here! How are you doing?
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Old 05-28-2007, 09:53 PM #5
phoebe phoebe is offline
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Default Hey Red,

I'm good. How about you? My husband just got through (with my help ) building a front screened in porch. It looks like an old country store porch that ought to have a Pepsi machine.

There's not much on tv now and tonight I found myself in a panic of what I was going to do, and I just decided it was time to say hi. It looks as though you folks are getting more than your share of rain down there. Good to talk to you again. phoebe
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Old 05-28-2007, 11:23 PM #6
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Default scary

Phobe,

It was the most frightening thing that has ever happened to me
that includes 20 years as a RN in acute care.

I really think that it was harder on my husband, son and especially my daughter who found me unconscious and 'green'

Last week I was asleep on the couch at 7:30am and my daughter was getting ready for school (I'm a light sleeper and she usually wakes me up)

She looked at me and thouht my color was bad again (but not as bad as before)
She called my name and I didn't wake up, so she shook me and called me.

I woke up suddenly with a long gasp and she broke into tears recalling the time I didn't wake up and she had to call the paramedics, etc

I started crying also, feeling so badly for what she has gone through with me.

That day my pulmonologist had me go to the ER to get a chest X-Ray and blood work. I will see him tomorrow in the office. The docs say I need a sleep study. When I was in the hospital the resp therapist told me I needed one also. When I would fall asleep the alarms would go off unless I was getting oxygen.

So, yes I'm scared, but not as scared as my family. I just don't want to get brain damage if my oxygen levels get low for too long. I have lost enough brain cells having tos.

Thank for asking Phoebe.
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Old 06-02-2007, 01:05 AM #7
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Aww hun that sounds absolutely terrifying!! Sorry you had to go through such a scary time. I hope they get you in for the study soon so they can get your breathing sorted out. I have asthma too and there is no worse feeling in the world than not being able to breathe. I filled wth fluid after my surgery in jan. and my lung collapsed. I am still having breathing issues and its been almost 5 months. I keep all of you wonderful people in my daily prayers.((((hugs)))0
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