Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


advertisement
Reply
 
Thread Tools Display Modes
Old 08-09-2014, 11:15 AM #11
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
Post

Quote:
Originally Posted by Jo*mar View Post
I know the nerve grows back, and the rate it does..

but I just got to wondering...
The whole nerve doesn't have to grow back does it?

Wouldn't it be just the part that was damaged?

The rest of the nerve is still there right?
Jo, that's a good point! Idk
16rhonda is offline   Reply With QuoteReply With Quote

advertisement
Old 08-09-2014, 11:22 AM #12
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
Cool

Quote:
Originally Posted by Toronto,Canada View Post
I had a partial right 1st rib resection May 2013, i'm still having issues with mine, it feels completely numb from my shoulder down (including my hand - with colour/temperature change). it was the same symptoms pre-surgery.

BUT... it could take up to 1-2 years for nerves to heal/regrow from an injury (or surgery).


everyone's body is different.
Sorry to hear this, feel better!
Rhonda
16rhonda is offline   Reply With QuoteReply With Quote
Old 08-09-2014, 11:33 AM #13
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
Default

Quote:
Originally Posted by kellysf View Post
I had surgery nine years ago with Dr. Avery. I have scar tissue on my brachial plexus, shown by MRI 8 months after surgery. I now see a physiatrist -- physical medicine and rehab. I don't have any plans for further surgery though I am sometimes tempted as I continue to get worse.
Kelly, sorry to hear this! U should see a neurologist if u can, ur pain could be coming from somewhere else like ur C-spine or local nerve comp. in ur arm. Does ur physiatrist do ncs/emg tests, some do.
Feel better
Rhonda
16rhonda is offline   Reply With QuoteReply With Quote
Old 08-09-2014, 02:22 PM #14
kellysf kellysf is offline
Member
 
Join Date: Mar 2007
Posts: 282
15 yr Member
kellysf kellysf is offline
Member
 
Join Date: Mar 2007
Posts: 282
15 yr Member
Default

I was treated for many years by a neurologist, before and after surgery. I also had MRI of my c-spine, before and after surgery. I may have a compression of a nerve in my arm as well, but the problem is higher I think because I have pain from the top of my head to the bottom of my ribs. I have not had an NCS/EMG since early in this journey -- probably 10 or more years ago.

Take care,
Kelly
kellysf is offline   Reply With QuoteReply With Quote
Old 08-11-2014, 11:29 PM #15
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
Post

Quote:
Originally Posted by kellysf View Post
I was treated for many years by a neurologist, before and after surgery. I also had MRI of my c-spine, before and after surgery. I may have a compression of a nerve in my arm as well, but the problem is higher I think because I have pain from the top of my head to the bottom of my ribs. I have not had an NCS/EMG since early in this journey -- probably 10 or more years ago.

Take care,
Kelly
Kelly, it can take at least 2 yrs sometimes longer for nerves to show abnormal on ncs/ emg 's. Mine did. U can also have a double crush, where the compression can be in neck/bp & in elbow or wrist. My tos surgeon said u can be more prone to compression in arm if u have comp. up above. Has Pec minor syndrome been ruled out? Rib pain is one of the sx. It affects the 3rd, 4 & 5th ribs. I have rib pain/soreness almost everyday, sometimes unbearably sore & burning. Sitting too long makes it worse. Crazy!!
I will be seeing my surgeon in Sept. for my 1 yr followup. Boy does time fly! I will? this Pec minor w him.
Sorry to hear u have been getting worse.
16rhonda is offline   Reply With QuoteReply With Quote
Old 08-31-2014, 11:17 AM #16
Donna4612 Donna4612 is offline
Newly Joined
 
Join Date: Aug 2014
Location: Maine, USA
Posts: 1
8 yr Member
Donna4612 Donna4612 is offline
Newly Joined
 
Join Date: Aug 2014
Location: Maine, USA
Posts: 1
8 yr Member
Default Nerve pain

Hi,
I Had a full 1st rib resection (full) April 2013 it helped with my symptoms but left me with alot of nerve damaged and i was told after ten months the nerves are done doing what they have to do so with that being said the nerves would not heal anymore and I just had a right Pectorails minor release 8-28-14 hoping this will help and to make sure i did not have another impingement because i was still having nerve firing in front chest that would go into back of right arm and up my chin.
I kept thinking it was going to get better but never did.
I had 6 or 7 Stellate Ganglion blocks done help for a very short time, a day or two then right back to square one. (It was a hit or miss) I felt i had no choice but to try everything and anything to help me and after this i can honestly say i have done everything possible to help me get better.
No drugs touch nerve pain and the ones they gave me to try would only make my head messed up. I got my injury back in March 2010. A very,very long road and afraid not done yet.
Donna4612 is offline   Reply With QuoteReply With Quote
Old 08-31-2014, 01:38 PM #17
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,427
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,427
15 yr Member
Default

Welcome Donna4612.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
Old 08-31-2014, 05:52 PM #18
Akash Akash is offline
Member
 
Join Date: Jul 2014
Posts: 330
8 yr Member
Akash Akash is offline
Member
 
Join Date: Jul 2014
Posts: 330
8 yr Member
Default InterX treatment

Hi all, I have been taking a lot of your advice & time for me to give something back in return.

Here is something which really worked for me - upto 2-3 months of pain relief after a week of treatment at one time. I'd rely on it more but the PTs & folks here are not too aware of how powerful it is & they dilute it with IFT & ultrasound (near worthless for TOS afaik)

I took it directly over my neck muscles & it really helped (in hindsight I should have realized I had TOS then).

http://www.interxtherapycenter.com/

Its basically a hand held "zapper" which acts like a powerful localized TENS. Hope for those of you in serious chronic pain & unable to take too much meds this works out.
Akash is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
16rhonda (09-01-2014)
Old 09-01-2014, 12:35 PM #19
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
16rhonda 16rhonda is offline
Member
 
Join Date: May 2013
Location: Southern NH
Posts: 179
10 yr Member
Post

Quote:
Originally Posted by Donna4612 View Post
Hi,
I Had a full 1st rib resection (full) April 2013 it helped with my symptoms but left me with alot of nerve damaged and i was told after ten months the nerves are done doing what they have to do so with that being said the nerves would not heal anymore and I just had a right Pectorails minor release 8-28-14 hoping this will help and to make sure i did not have another impingement because i was still having nerve firing in front chest that would go into back of right arm and up my chin.
I kept thinking it was going to get better but never did.
I had 6 or 7 Stellate Ganglion blocks done help for a very short time, a day or two then right back to square one. (It was a hit or miss) I felt i had no choice but to try everything and anything to help me and after this i can honestly say i have done everything possible to help me get better.
No drugs touch nerve pain and the ones they gave me to try would only make my head messed up. I got my injury back in March 2010. A very,very long road and afraid not done yet.
Hi, did u have a block or botox in the Pec minor muscle bf your Pec m surgery? Was this dx? I heard on here u can't lift your arm after this surgery. Is this true w u? How long is recovery supposed to be?
Curious who was your Dr? Was same Dr who did your tos surgery?
I have rib pain & outside armpit/shoulder/scapula soreness. Also pain & soreness going down back upper arm & forearm/hand. I have abnormal sensory in radial nerve on ncs, which I'm pretty sure starts in back of armpit & goes down back of arm.
Wondering why u only had rib removed not scalenes?
Did your surgeon say your nerves were damaged due to the surgery? Or just not healing?

Good luck with your recovery!!
16rhonda is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Which surgery hurts worst neck fusion or tos surgery Logan17 Spinal Disorders & Back Pain 5 08-28-2013 09:28 PM
neck surgery on 5/28. has anyone had similar surgery or any advise Annie1023 Spinal Disorders & Back Pain 14 08-26-2013 07:50 AM
Back surgery and nerve damage after surgery kabrina New Member Introductions 1 02-14-2012 12:07 AM
Tara's official surgery/surgery info thread! tchr012 SCS & Pain Pumps 41 10-07-2010 08:54 PM


All times are GMT -5. The time now is 11:57 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.