Thoracic Outlet Syndrome Thoracic Outlet Syndrome/Brachial Plexopathy. In Memory Of DeAnne Marie.


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Old 08-04-2014, 01:09 AM #1
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Has anyone had worsening nerve pain n numb 6-7 mo postop tos surg w abnormal ncs of the Median, ulnar, radial sensory nerves?

I had worsening nerve pain and numbness 3 or 4 months after surgery, but I never had an NCS following surgery. I did have one before surgery but it was normal.
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Old 08-04-2014, 08:37 PM #2
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I had worse nerve pain following the pec minor release, but it is getting better. It is painful as it grows back is my understanding.
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Old 08-04-2014, 11:26 PM #3
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I had worse nerve pain following the pec minor release, but it is getting better. It is painful as it grows back is my understanding.
How many mos postop are u? What grows back? Dont understand?
Thanks Eight
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Old 08-05-2014, 02:04 PM #4
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I had surgery nine years ago with Dr. Avery. I have scar tissue on my brachial plexus, shown by MRI 8 months after surgery. I now see a physiatrist -- physical medicine and rehab. I don't have any plans for further surgery though I am sometimes tempted as I continue to get worse.
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Old 08-09-2014, 11:33 AM #5
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I had surgery nine years ago with Dr. Avery. I have scar tissue on my brachial plexus, shown by MRI 8 months after surgery. I now see a physiatrist -- physical medicine and rehab. I don't have any plans for further surgery though I am sometimes tempted as I continue to get worse.
Kelly, sorry to hear this! U should see a neurologist if u can, ur pain could be coming from somewhere else like ur C-spine or local nerve comp. in ur arm. Does ur physiatrist do ncs/emg tests, some do.
Feel better
Rhonda
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Old 08-09-2014, 02:22 PM #6
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I was treated for many years by a neurologist, before and after surgery. I also had MRI of my c-spine, before and after surgery. I may have a compression of a nerve in my arm as well, but the problem is higher I think because I have pain from the top of my head to the bottom of my ribs. I have not had an NCS/EMG since early in this journey -- probably 10 or more years ago.

Take care,
Kelly
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Old 08-11-2014, 11:29 PM #7
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I was treated for many years by a neurologist, before and after surgery. I also had MRI of my c-spine, before and after surgery. I may have a compression of a nerve in my arm as well, but the problem is higher I think because I have pain from the top of my head to the bottom of my ribs. I have not had an NCS/EMG since early in this journey -- probably 10 or more years ago.

Take care,
Kelly
Kelly, it can take at least 2 yrs sometimes longer for nerves to show abnormal on ncs/ emg 's. Mine did. U can also have a double crush, where the compression can be in neck/bp & in elbow or wrist. My tos surgeon said u can be more prone to compression in arm if u have comp. up above. Has Pec minor syndrome been ruled out? Rib pain is one of the sx. It affects the 3rd, 4 & 5th ribs. I have rib pain/soreness almost everyday, sometimes unbearably sore & burning. Sitting too long makes it worse. Crazy!!
I will be seeing my surgeon in Sept. for my 1 yr followup. Boy does time fly! I will? this Pec minor w him.
Sorry to hear u have been getting worse.
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Old 08-07-2014, 05:33 PM #8
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How many mos postop are u? What grows back? Dont understand?
Thanks Eight
8 months. The nerves grow bac at an inch a month. Measure the length of your arm. However many inches your arm is, it won't take longer than that.

It's painful because they misfire when growing back.
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Old 08-07-2014, 07:11 PM #9
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I know the nerve grows back, and the rate it does..

but I just got to wondering...
The whole nerve doesn't have to grow back does it?

Wouldn't it be just the part that was damaged?

The rest of the nerve is still there right?
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Old 08-09-2014, 11:15 AM #10
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I know the nerve grows back, and the rate it does..

but I just got to wondering...
The whole nerve doesn't have to grow back does it?

Wouldn't it be just the part that was damaged?

The rest of the nerve is still there right?
Jo, that's a good point! Idk
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